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Wednesday, February 3, 2010

Wed Feb 3, 2010


Still smiling even though he was in pain
Today was quite the rollercoaster. We had a rocky night-Blake developed a rash where they cleaned him off with the blue surgery soap. He was so uncomfortable. It got worse throughout the night. By 4am it was waking him up and it had spread down to his tummy. Poor kid. They had already given him benedryl when we first saw the rash-so they gave him another dose at 4, and now we have to continually give it to him for 24 hours. He looks a lot better now. His skin is just SO sensitive.
So after all that he slept better-woke up and ate some grapes and a yogurt smoothie for breakfast. Then out of nowhere he started crying-like he was in severe pain! It was the worst I've ever seen him. He couldnt get comfortable and kept crying "owie mama owie...owie". I felt so helpless not knowing how to help him. We paged our nurse-Laura-who by the way is AMAZING!! She came in and after looking him over and talking to us and him. She determined it was probably his tummy. Being cramped and sore. He hadn't pooped/tooted since we got here-and his medication causes constipation on top of the fact that the tone in his leg that causes constipation too. He hadn't had anything to eat since Mon night-on top of him having a sore tummy due to the g-tube surgery. So all of that together caused him to be in a lot of pain. He ended up passing out from exhaustion. He slept a for a little while. Of course he was sleeping when it was time for his pain meds. We ended up giving it to him while he was sleeping and he actually raised his left hand while sleeping and gave us an unconcious thumbs up. lol. He is so funny!
When he woke up a few hours later he was in a lot better mood. While he was sleeping the pharmacist came in and gave Phil and I a lesson on giving the chemo. There are so many precautions we have to take. Its crazy! Once we were done learning and asking quiestions my grandparents came up and Blake perked right up! He loves his Gigi and Papa! Then at 6pm we gave him his first dose of chemo. It actually went really well. He took it like a champ and he helped me push it through his g-tube. Which by the way he has named it his "tubot" lol. He thinks he can shoot us with it lol. Boys! lol.
Finally a few hours later he had a huge blowout! It was pretty gross-lucky for me Nana was here to help me since dad ran home for a few things lol. I was SO happy to see him finally poop. I dont think Ive ever been so happy to see him poop. We had to give him a sponge bath and wipe him down-it was a mess! Mimi and Uncle Jon came up while my mom and Arlene were here. Of course Mimi gave Blake lots of trouble. She is so funny. Blake had a really good night. We are scheduled to go home tomorrow. Im hoping Blake will be ready to walk and be out of bed, he has been in bed since we got here. The only thing he is really not liking is his face mask. Of course the one thing he needs to wear a lot. He coulnd't care less about his g-tube or port. Lol. But if you show him his mask he says NO and covers his mouth. Im hoping if we decorate it with some cool stickers he will be more willing to wear it. So as our day comes slowly to an end-its been overall pretty good. We have our next dose of chemo at midnight. And every six hours after that for 3 days. Its gonna be almost a year of chemo with this protocol. So this is the beginning. Thanks you again for all your support! We appreciate all of you so much!

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