Hello everyone! We had a mixed weekend. Part good-part bad...
On the good side-Phil and I were able to finally paint our bedroom-it is the last room in the house that we havent done anything to. So finally we are working on taking it from catch all to MASTER BEDROOM. lol. We also found a doll house on craigslist-so Blake has been playing with it ALL weekend. He sure does like pretending with the people. lol.
Ok so then on the down side-Blake is suffering big time from the vincristine. He cries whenever he eats anything-soft or not. He is drinking a little-I am pushing fluids through his g-tube. Thank god for the g-tube. He says owie a lot-so far it seems his jaw, mouth, legs, and ears are hurting him. He didnt sleep at all last night. He came into my room and tossed and turned-crying owie all night. It breaks my heart watching him suffer. I put a call into his oncology nurse-waiting to hear back from her. I know they have to have a pain med or something to help make him more comfortable. We have to go back next week to get another dose-so im hoping we figure something out today to help with the pain and discomfort. On top of the pain he has a cold and a croup cough. I am waiting to talk to our nurse to find out if the medicine I know they will prescribe for his croupe will effect his chemo regimen. Im thinking about seeing if we cant get a pediatrician at CM so that its easier for us to keep track of the meds and what not. I love our current pediatrician-but she is with a totally different hospital and I want to make sure Blakes docotrs are all on the same page. So please say a prayer for Blake-its really hard watching him suffer and not knowing what to do-or if there is anything I can do for him. Hopefully our nurse calls us soon!
On the good side-Phil and I were able to finally paint our bedroom-it is the last room in the house that we havent done anything to. So finally we are working on taking it from catch all to MASTER BEDROOM. lol. We also found a doll house on craigslist-so Blake has been playing with it ALL weekend. He sure does like pretending with the people. lol.
Ok so then on the down side-Blake is suffering big time from the vincristine. He cries whenever he eats anything-soft or not. He is drinking a little-I am pushing fluids through his g-tube. Thank god for the g-tube. He says owie a lot-so far it seems his jaw, mouth, legs, and ears are hurting him. He didnt sleep at all last night. He came into my room and tossed and turned-crying owie all night. It breaks my heart watching him suffer. I put a call into his oncology nurse-waiting to hear back from her. I know they have to have a pain med or something to help make him more comfortable. We have to go back next week to get another dose-so im hoping we figure something out today to help with the pain and discomfort. On top of the pain he has a cold and a croup cough. I am waiting to talk to our nurse to find out if the medicine I know they will prescribe for his croupe will effect his chemo regimen. Im thinking about seeing if we cant get a pediatrician at CM so that its easier for us to keep track of the meds and what not. I love our current pediatrician-but she is with a totally different hospital and I want to make sure Blakes docotrs are all on the same page. So please say a prayer for Blake-its really hard watching him suffer and not knowing what to do-or if there is anything I can do for him. Hopefully our nurse calls us soon!
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