So we were driving to Rehab this morning and Blake has a mixed cd that we were listening to. One of the songs is 'Dont Worry' by Bob Marley. I was singing to it-the sun was shining, Blake was boppin his head to the music. As I looked back at him I decided that im gonna try to live by those words-'dont worry about a thing-every little thing is gonna be alright'. Through these past 8 months Ive had my worries and somehow so far everything has been alright. That song really hit home to me today. I have amazing support-we are surrounded by friends and family who love us-and everyone is rooting for Blake. I feel like no matter what gets sent our way-we are going to get through it. God has a plan-I dont know exactly what it is yet-but I know he wouldnt give me more than I can handle. So Im not gonna worry-everything will be ok! :)
So, today we had a really good day-it was long-but good. We went to therapy and Blake worked really hard. Then we headed over to CM so Blake could get fitted for his new leg brace. He picked a space theme brace with a hot pink strap and a blue strap. lol He had to have something pink on it. lol. We go back in 2 weeks to get his new brace. I am so excited that we are finally getting a totally new one-its gonna have a hinged ankle. Maybe this will help him walk easier. On our way out I stopped by interventional radiology to have Deb look at his tummy. The area around the g-tube was kind of red-so I wanted to make sure it wasnt infected. He really hates when we have to take his bandages off. Poor guy. She said everything looked ok. But to keep an eye on the redness. Blake was exhausted by the time we got to the car. It was WAY past his nap time. He passed out on the way home and took a nice nap once we got home. Thank goodness! Thursday is our Vincristine(chemo) apt at CM. Im a little nervous. Ive seen the side effects its had on my neice-Kathryn. I know each kid can have different side effects. Im hoping he does great just like he has so far with everything else. He is quite the little fighter. :) Im gonna think positive and pray that he has minimal side effects. I will keep all of you posted on how it goes!
So, today we had a really good day-it was long-but good. We went to therapy and Blake worked really hard. Then we headed over to CM so Blake could get fitted for his new leg brace. He picked a space theme brace with a hot pink strap and a blue strap. lol He had to have something pink on it. lol. We go back in 2 weeks to get his new brace. I am so excited that we are finally getting a totally new one-its gonna have a hinged ankle. Maybe this will help him walk easier. On our way out I stopped by interventional radiology to have Deb look at his tummy. The area around the g-tube was kind of red-so I wanted to make sure it wasnt infected. He really hates when we have to take his bandages off. Poor guy. She said everything looked ok. But to keep an eye on the redness. Blake was exhausted by the time we got to the car. It was WAY past his nap time. He passed out on the way home and took a nice nap once we got home. Thank goodness! Thursday is our Vincristine(chemo) apt at CM. Im a little nervous. Ive seen the side effects its had on my neice-Kathryn. I know each kid can have different side effects. Im hoping he does great just like he has so far with everything else. He is quite the little fighter. :) Im gonna think positive and pray that he has minimal side effects. I will keep all of you posted on how it goes!
No comments:
Post a Comment