Sun Feb 28, 2010

Our weekend was GREAT!! On Saturday we had my sister in law and my niece Katie over, and a great surprise-Christian came over too-she got back 2 days early from her cruise! WE MISSED HER SO MUCH! So we had lots of company on Saturday. Blake had a blast! He played with Katie-Aunt Val read books, Christian worked her magic and got Blake to wear his mask!! So we were able to go to Wal-mart and went out to eat!! I think we both needed that. Then after we came home we left the boys home and Christian and I went to a movie! It was so great to be out of the house and have it be just me-no Blake. I always forget how much I need it until I go out finally. It was SO fun. We went and saw Valentines Day. I really had a lot of fun.
Today I woke up and was up at Union Hill at 10. I met Kelsey up there to decorate the office-its Union Hills Anniversary week and the whole school has been transformed into a Circus/Carnival. It looks AMAZING. All the teachers did such a great job on their rooms. The office I must say looks great. I wish I would have had the time to do some more handmade decorations, its been hard with Blake not feeling well. Maybe next year-wink wink-if Pam and Terri need help again. :) I love doing that kind of stuff. I have actually been inspired to have a circus theme birthday for Blake this year lol. Well, if all works out the way im hoping. Once we got done at 3, I came home. I was pretty exhausted. But it was totally worth it. I think the kids are going to love the giraffe and zebra we put up in the office. They look so cool. So I came home after and relaxed a little. Of course that was for only a short time. Blake was begging Christian and me to take him bye bye. So I gave in-how can I not, he was willing to wear his mask and everything. So we went over to Target to look around. Blake was so good. He kept his mask on the whole time. I dont think he will wear it for me lol, but with Christian with us-he keeps it on. I dont know how she gets him to do it. We came home and Blake had a snack/late dinner. Then we all hung out and played, read books, watched oobi and Olivia, then tucked Blake into bed. It was a long busy, but very nice weekend. This week we have our OT/PT apt to get his new brace on Tues and then Vincristine on Thurs. Hopefully we can go to Rehab this week-Blake misses his girls, lol. He loves going to see them all. They are all so amazing! So I am hoping we have a great week follow our great weekend! I will talk to you all soon!! :)

Fri Feb 26, 2010

Boy oh boy do I feel like im on some crazy carnival rollercoaster. lol. So I thought Blake was feeling better-yesterday was such a good day. Then last night around midnight he woke up crying-i dont think he was in pain-but for the life of me I couldnt figure out what was wrong. So I just tried to console him. He cried off and on every 30-60 min ALL night long. I am so tired today. His is too!! He is super fussy and one minute we are fine then wham-he is throwing a temper tantrum out of nowhere. Oh boy. Its like im riding the roller coaster that goes through the fun house. Scary one min-funny the next. Oh boy! I tried to do an art project to put him in a better mood. We painted, attempted putting beads on string-he isnt quite ready for that I found out. lol More beads were on the floor than on his string. lol. We took a short walk down the street to our mail box, and got the mail. In the mail were 2 cards. One from a family memeber for Blake, letting him know they were thinking about him and hopes he gets to feelin better. The other was from my favorite Salon Bliss girls. They all signed a card and inside was a Target gift card. I seriously have the most amazing supporters! You all never stop thinking of us. My day just brightened. How can it not-knowing all of you are behind me-through all of this. We are going on our 8th month and I think I have more support now then when this first began. So thank you for sticking it out with us. We have a long road ahead of us and I feel like we have an army of support that is so strong, we can make it through anything!! Thanks everyone!! :) I hope my day stays bright and that Blake gets to feeling better!! Phil is working 6 days this week-so my 'break time' is gonna be few and far between. Im hoping I can get some sleep and then I know I can make it!! :)

Thur Feb 25, 2010

Hi guys! So Blake seems to be feeling A LOT better! Thank you all for your prayers! That was a rough couple of days. We go back next Thursday for his next round of vincristine. :( Im hoping the next round will be easier on him. We somehow got a lot accomplished this past week-our master bedroom is finally painted and looks like a room. lol. Its amazing how some paint and rearranging can spruce up a room. It actually is relaxing to be in there now. :) I was also able to rearrange Blakes room today, and clean the playroom up. Finally got our living room back to normal. Our whole house was turned upside down over the weekend so we could paint. Then add an art project im doing for Union Hill lol-our living room was looking crazy lol. I am so excited to decorate the school on Sunday. My cousin Kelsey and I have been working on the decorations for Union Hills Anniversary Week. It is my favorite week! They decorate the whole school to a theme. Last year we did a farm, this year its the circus!! How fun is that?! I cant wait to hear what Pam and Terri think. Kelsey and I are both super excited! This weekend my sister-in-law is bringing my youngest neice on Phils side over to play with Blake. She is so excited to see Blake's port(buddy). She is going through chemo as well and has a port too. She has luekemia, well there is no sign of it anymore-but she still will have to be on chemo for another couple years. Anywho-she is 3 and Blake loves playing with her. It will be nice for him to have someone to play with that is his age. I know he really misses all his friends at his preschool. If he would keep his mask on-I would love to take him up there so he could say hi. But the stubborn little guy wont even put it on let alone keep it on. Stinker. I dont blame him though. I wouldnt want to wear it either. It should be a great weekend now that he is feeling better. I am prayin next week will be a good one too!

Mon Feb 22, 2010

Hello everyone! We had a mixed weekend. Part good-part bad...
On the good side-Phil and I were able to finally paint our bedroom-it is the last room in the house that we havent done anything to. So finally we are working on taking it from catch all to MASTER BEDROOM. lol. We also found a doll house on craigslist-so Blake has been playing with it ALL weekend. He sure does like pretending with the people. lol.
Ok so then on the down side-Blake is suffering big time from the vincristine. He cries whenever he eats anything-soft or not. He is drinking a little-I am pushing fluids through his g-tube. Thank god for the g-tube. He says owie a lot-so far it seems his jaw, mouth, legs, and ears are hurting him. He didnt sleep at all last night. He came into my room and tossed and turned-crying owie all night. It breaks my heart watching him suffer. I put a call into his oncology nurse-waiting to hear back from her. I know they have to have a pain med or something to help make him more comfortable. We have to go back next week to get another dose-so im hoping we figure something out today to help with the pain and discomfort. On top of the pain he has a cold and a croup cough. I am waiting to talk to our nurse to find out if the medicine I know they will prescribe for his croupe will effect his chemo regimen. Im thinking about seeing if we cant get a pediatrician at CM so that its easier for us to keep track of the meds and what not. I love our current pediatrician-but she is with a totally different hospital and I want to make sure Blakes docotrs are all on the same page. So please say a prayer for Blake-its really hard watching him suffer and not knowing what to do-or if there is anything I can do for him. Hopefully our nurse calls us soon!

Thur Feb 18, 2010

Today we had our first dose of vincristine. We got to the oncology clinic and they put the numbing cream on the area where Blake's port is at. We waited 30 min then she came back and took his blood-to get his counts. Then gave him his dose of chemo. It was done with a syringe. I thought it would be an iv drip. It was so quick. lol. Totally unexpected. We had to wait for his counts to come back to make sure they werent low. While we were waiting they have a playroom with lots of toys to play with. So we brought some toys back to our room. One of the toys Blake seemed to love was a doll house. I think it was a Fisher Price one. He loved it. He was talking a lot. "Mama go up stair", "Dada mirror","Mimi night night shh" and he just kept on talking. I was shocked at how much he was talking-in sentences. He had his evaluation for speech a while ago-and she picked him back up-because his articulation and comprehension had decreased. So seeing him using his words and putting them in sentences was really great. Once we got his count results back they looked good. So we cleaned up-well kinda. I had to get the house out of Blakes hands lol. Once we were on our way out the door-Blake kept sayin "doll house mama"-it continues all the way home. I thought once we got home he would forget about it. Nope. lol. All night he has been asking for "doll house". I posted a request on my facebook, Im hoping someone has a daughter who has outgrown theirs. lol. He really really liked that doll house. Who would of thought. Its like the one thing we dont own. lol. He has really been getting into pretend though. We cook at his kitchen, and build houses with legos, play with his cars and garage, but we dont really have a house or mom and dad with a baby. Blake is such a funny kid. So far the chemo hasnt had any noticable side effects on him. He has been playing all night and he has all of his energy. He is a little fussy but he also didnt really get a full nap today. We are stayin home tomorrow just in case he is not feelin good. I have a feeling that he is gonna be fine though. Thank you all for keeping us in your prayers and thoughts. Blake is still goin strong! Oh and he still hasnt shown any signs of losing his hair-so thats great too! We have had a pretty great day!

Tues Feb 16, 2010

So we were driving to Rehab this morning and Blake has a mixed cd that we were listening to. One of the songs is 'Dont Worry' by Bob Marley. I was singing to it-the sun was shining, Blake was boppin his head to the music. As I looked back at him I decided that im gonna try to live by those words-'dont worry about a thing-every little thing is gonna be alright'. Through these past 8 months Ive had my worries and somehow so far everything has been alright. That song really hit home to me today. I have amazing support-we are surrounded by friends and family who love us-and everyone is rooting for Blake. I feel like no matter what gets sent our way-we are going to get through it. God has a plan-I dont know exactly what it is yet-but I know he wouldnt give me more than I can handle. So Im not gonna worry-everything will be ok! :)

So, today we had a really good day-it was long-but good. We went to therapy and Blake worked really hard. Then we headed over to CM so Blake could get fitted for his new leg brace. He picked a space theme brace with a hot pink strap and a blue strap. lol He had to have something pink on it. lol. We go back in 2 weeks to get his new brace. I am so excited that we are finally getting a totally new one-its gonna have a hinged ankle. Maybe this will help him walk easier. On our way out I stopped by interventional radiology to have Deb look at his tummy. The area around the g-tube was kind of red-so I wanted to make sure it wasnt infected. He really hates when we have to take his bandages off. Poor guy. She said everything looked ok. But to keep an eye on the redness. Blake was exhausted by the time we got to the car. It was WAY past his nap time. He passed out on the way home and took a nice nap once we got home. Thank goodness! Thursday is our Vincristine(chemo) apt at CM. Im a little nervous. Ive seen the side effects its had on my neice-Kathryn. I know each kid can have different side effects. Im hoping he does great just like he has so far with everything else. He is quite the little fighter. :) Im gonna think positive and pray that he has minimal side effects. I will keep all of you posted on how it goes!

Sat Feb 13, 2010

The girls and I at Houlihans

Hi everyone! So I have to tell you about my birthday. I had one of the BEST birthdays I've ever had. My very close friend, Christian, surprised me by taking me to dinner at Houlihan's. Dinner included Christian, Megan, Sara, and myself. It was so nice to be out with the girls! Phil stayed home to watch Blake-we are celebrating my bday tonight. So back to my story lol. We got our booth and ordered our drinks, then Christian said she had some gifts for me. I, of course, was begging her to open them once we got home-lol-not at the restaurant. She insisted and then pulled out an envelope. Okay-I thought I can handle this. :) I opened the card and it was from one of the mom's at Union Hill Day School (where I used to teach at). There was money in it and a sweet note. Then she handed me another envelope. Inside was a letter from another mom at the school-she is putting on a silent art auction-of children's art. Where parents enter their child's art to be displayed at First Friday's. Then she will have the silent auction to raise money to help us. I started crying. This is already a lot to take in. There was more...she hands me another envelope. Inside this one is a gift card for $260 to QT to use for gas. Christian said she posted a note in her class room and in Kelsey's that was letting the parents of Union Hill know that my birthday was Feb 12 and that she was raising money to help with gas. Needless to say, a bunch of parents and friends and family donated! Since we have to travel downtown several times a week for Rehab and doctors apts and with gas going up and down-this meant a lot to me. One more thing to not have to worry about. There was also some cash and 2 Walmart gift cards. I was so choked up. Christian is always looking for ways to lighten my stress load. I don't know what I would do without her. Ok so there is still more. Then she hands me a scrapbook. I open it up and Kelsey-my cousin-who also took over my class room when I left-had put together pictures of all my kids-I couldn't even finish looking at it because my eyes were filled with tears. I miss all of them SO much! Leaving my class was really really hard. (Later on that night I did finish looking at all the pictures and on the last page Kelsey wrote me the sweetest letter-again i got choked up.) I thought it was all over, then Megan went to her car and got an envelope that was from my mom. Inside there were 2 checks-one from her and one from Arlene, saying to use them on ME at my favorite store(thrift store) for clothes. Again I teared right up. It was a very emotional dinner. lol. I also got a card in the mail from my friends Kristen and Nick-a QT gift card and a gift card for Chilli's. There is a date night calling my name. ;)

Now thats what I'm talking about! Yummy desserts!!

I feel so blessed to have all of you behind us. I know I say it a lot-but I know things would be SO different if we didnt have all of you supporting us. It makes such a difference having amazing people surround us and hearing all your prayers and thoughts-not forgetting us and always keeping up to date on Blake and his progress. Honestly I dont know if I will ever be able to help you the way you have helped us. You help us in so many ways. Emotionally, spiritually, financially, its never ending. I cry sometimes because I have seen the families that dont have a lot of support, and I feel so rich with love and support, you have made such a difference in our lives. Thank you all for everything you have done. And thank you all for loving Blake. I am able to take care of him and stay positive with all your help. So truly thank you!! This will be a birthday I will never forget!

Wed Feb 10, 2010

Hi everyone! I just wanted to let you all know that Blake is recovering great! We went to Rehab today and Blake worked really hard. I think he was ready to be back. Everyone seemed to be happy to see him back too! He seems to be back to his old self again. I know he is still a little sore where the g-tube is, but that is to be expected. He continues to be such a happy kid through all of this. It still amazes me. Now that he is feeling better he actually seems to be talking more and talking more clearly. Its kinda weird, im not sure what has changed lol. Even his speech therapist noticed today. It might just be from having a break from Rehab for a week, I dont know. No Rehab tomorrow though. Im looking forward to getting caught up on my rest. I still feel exhausted. Its a horrible feeling. lol. Especially since there is ALWAYS something that needs to be done. House cleaning, laundry, taking care of Blake, more laundry, dishes...lol. It goes on and on. So being exhausted doesnt really work for me. lol. I hope after tomorrow I feel more rested! Im hoping to have a relaxing weekend. It is my birthday Friday-so hopefully if I get my way I can just relax. :) I know im getting old when staying at home and not doing anything sounds better than going out and partying. lol. Well, thats about it for now. I will talk to you all later!! Thanks for taking the time to read my updates. I feel lucky to have all of you behind me!! :)

Mon Feb 8, 2010

We are finally home!! I am SO glad. We got home around 430. They let us know that all his blood cultures came back clean-no infection. So im not really sure what caused Blake's g-tube site to swell, they said it could have been a delayed post surgery swelling, but who knows. Im sure the antibiotic helped, as well as the stool softener, and miralax. lol. Of course we couldnt leave the hospital without Blake going through one more ordeal. Around lunch time the doctors came in to look at his g-tube, since it had been a little red. When the nurse went to take the dressing off-it for some reason was sticking to the tube and was pretty hard to get off. It took the nurse quite a long time to finally get it off. Poor girl, poor Blake. She was SO sweet though! She ended up calling in several different nurses before finding one who was familiar with Blakes type of tube. She wanted to make sure that it looked ok-the tube was moving in and out a little. It was kinda gross. lol. Then Deb from interventional radiology came up to look at it and re-show me how to change the dressing. Blake by that time was so exhausted from crying. I felt horrible. He has had a rough week. I am praying that from here on out its a little smoother sailing for him. All the nurses were impressed at how strong and brave he is for a 2 year old. He got a red popsicle, and that made him feel better. Once that ordeal was over we packed up our room, and came home. Blake was SO excited to be home and watch 'Olivia'-he loves that show on NickJr. While we were at the hospital one of the Child Life helpers found an Olivia book for Blake to look at, he loved it. So once we watched Olivia at home, and he ate some mini muffins-thank goodness he wanted to eat,we ALL took a nap. I am really feeling it now that we are home. My body is so exhausted and tired. Its always amazing to me that while we are in the hospital I just go into mom mode and can make it on such minimal sleep. But man, once we get home it hits me hard. I am hoping after a good nights sleep tonight I will have the energy to clean our house. It looks like a tornado came through. Ugh. lol. I also have a huge pile of CLEAN clothes on our futon down stairs that need to be put away. I wish I was Mary Poppins and could just sing a song and snap my fingers and the house would clean itself. lol. Wouldnt that be nice?! We shouldnt have to go back to Childrens Mercy until Friday-our apt to get Blakes g-tube buttons cut off. So this should be a pretty uneventful week. I called Rehab Institute and let them know I was keeping Blake home tomorrow so we can have a day home. Blake needs it-and i def do too! I will keep you all posted on any further development. Talk to you soon!

Sun Feb 7, 2010

Well, if you havent already heard-we are back at Childrens Mercy. Friday night Blake woke up crying of pain and wanted to sleep with me. So I went ahead and let him. It was a lot easier giving him his chemo at midnight since I was able to use the bathroom light and he was in a bigger bed. He didnt sleep very well all night. In the morning I gave him his next dose of chemo-and again he cried and sounded like he was in pain. When Phil got home from work later that morning I had him call the Hemoc/Onc on call nurse. She said we should try giving him the anti-nausea medicine. So we did, hoping that it would help him feel better. Unfortunately 30 min later he threw up-twice. Poor kid. The majority of the day we all slept. Blake woke up around noon-after I gave him his next dose of chemo-and wanted to watch "Elmo world"(Sesame Street). So I took him out to the living room to watch it. He felt right asleep, and then I did too. At 2:30 he woke up and sounded like he was sore. I felt his forehead and I knew he had to have a fever. I took his temp and it was 102.2. The doctors told us if its 101.5 or higher its considered an emergency, and to be at the ER within an hour. So we called the on call nurse to let her know we were headed to the ER and to call ahead so they would expect us. Phil worked the night before so he was sleeping. When I went back to let him know he was up and dressed brushing his teeth before I even had a nurse on the phone. lol. Normally he is a hard one to wake up. So we were in the car-bag packed(just in case)and on our way to Childrens Mercy ER. We stopped to get gas and coffee-and still arrived to the hospital within the hour. We were able to go right back to a room, lucky for Blake he only had to wear his mask for a short time. Once we got back to the room they looked him over. We saw that his tummy was swollen where the g-tube was put in. We hadn't noticed it when we were at the house. Over the next several hours they ran an X-ray, CT and accessed his port for the first time without numbing cream. He was such a trooper. I was so proud of him. Finally around 9pm we were taken up to our room. Again we were on 4 Henson and this time room 5 not 3 lol. I gave Blake his last oral dose of chemo for this cycle at midnight. Im glad thats over for now. It was hard on both of us. I know the more I do it the easier it will be-but its hard to get good sleep when you have to wake up to give him the pain med and anti-nausea med and then wait 30 min to give him the chemo-which i have to mix. Im hoping it was hard this time because we just got out of the hospital and I was tired from that. Its really not difficult.
They let me know in the middle of the night the CT came back showing NO absess, and the X-ray didnt show anything abnormal. His white blood cell count was high-so there are several things that could mean. Infection, virus, inflamation, etc. They are giving him an antibiotic-he will have to continue for 7 days. We are still waiting to see if the cultures grow any infection-if by tomorrow they dont find anything, hopefully we will be headed home. So today we hung out in our room. My grandparents stopped by, then my mom and Arlene brought me some lunch stuff, Katie and Lauren showed up that night. I know Blake loves seeing everyone. Christian once again came up to stay with me since Phil has to work. Phil stopped by for a few hours before work-Blake was askin about him a lot during the day. I know he misses him when we are up here and Phil has to work. Then somehow the needle going from the iv into the port became dislodged filling the area around the port with fluid.This was pretty painful for Blake. He cried so hard. They had to take the bandage off and reinsert the needle into his port. It was hard to sit and watch. Then they sterilized the area and recovered it with a new bandage. He was so exhausted after that. They gave him a pain med to help with the discomfort, and finally after fighting it-he fell asleep. Today was pretty exhausting even though we didnt do much. I am so ready to be home and back to normal everyday life. Well as normal as we can get lol. I cant imagine having to stay up here long term like a lot of the families do. I have a whole new appreciation for being able to stay home during Blakes chemo treatments. I know things can always be worse-Im trying to continue my appreciation of all the things positive in our lives and look at all the amazing things that have happened during this time. I know my last couple posts havent sounded as peppy as my previoius ones. Its been a rough week-and im just trying my best to continue taking it one day at a time to get through this week. I am so thankful for everyone who is praying, supporting, and thinking of us during this time. Thank you all! Seriously!

Fri Feb 5, 2010

Well we got home yesterday around 4ish. We had to wait in the pharmacy for all Blake's meds for almost an hour after we were discharged. It was not fun. Plus Blake has to wear a mask-to protect him from germs-he hates it. So sitting in the CM pharmacy room with a bunch of sick kids trying to keep Blake from taking his mask off-ugh. It wore us all out. On our way home Blake fell asleep-I think the chemo makes him tired. He only ate a few bites of dinner. Im hoping now that we are home his appetite will come back. He took a nap after dinner and woke up crying after I gave him his 6 o'clock dose of chemo. It breaks my heart! He just layed next to me on the couch watching Sesame Street and then Cars for the whole night. He is weak-and cant walk very well by himself. He wants me to carry him-and he is NOT light lol. My poor back. A mom's gotta do what a mom's gotta do though. :) Im hoping his energy returns soon. Im still trying to figure out everything. There is SO much to do-im trying to get organized but its kinda overwhelming right now. Im sure after a day or two I will figure it all out. I know Blake is glad to be home. I am too! So we are sitting on the couch, watching Sesame Street and watching the snow come down. Its nice. I just wish Blake felt better! We finish his oral chemo on Sunday. Then go in on the 18th for vincristine. I will keep you posted! Thank you for praying for my lil guy and Phil and I. <3

Wed Feb 3, 2010

Still smiling even though he was in pain

Today was quite the rollercoaster. We had a rocky night-Blake developed a rash where they cleaned him off with the blue surgery soap. He was so uncomfortable. It got worse throughout the night. By 4am it was waking him up and it had spread down to his tummy. Poor kid. They had already given him benedryl when we first saw the rash-so they gave him another dose at 4, and now we have to continually give it to him for 24 hours. He looks a lot better now. His skin is just SO sensitive.

So after all that he slept better-woke up and ate some grapes and a yogurt smoothie for breakfast. Then out of nowhere he started crying-like he was in severe pain! It was the worst I've ever seen him. He couldnt get comfortable and kept crying "owie mama owie...owie". I felt so helpless not knowing how to help him. We paged our nurse-Laura-who by the way is AMAZING!! She came in and after looking him over and talking to us and him. She determined it was probably his tummy. Being cramped and sore. He hadn't pooped/tooted since we got here-and his medication causes constipation on top of the fact that the tone in his leg that causes constipation too. He hadn't had anything to eat since Mon night-on top of him having a sore tummy due to the g-tube surgery. So all of that together caused him to be in a lot of pain. He ended up passing out from exhaustion. He slept a for a little while. Of course he was sleeping when it was time for his pain meds. We ended up giving it to him while he was sleeping and he actually raised his left hand while sleeping and gave us an unconcious thumbs up. lol. He is so funny!
When he woke up a few hours later he was in a lot better mood. While he was sleeping the pharmacist came in and gave Phil and I a lesson on giving the chemo. There are so many precautions we have to take. Its crazy! Once we were done learning and asking quiestions my grandparents came up and Blake perked right up! He loves his Gigi and Papa! Then at 6pm we gave him his first dose of chemo. It actually went really well. He took it like a champ and he helped me push it through his g-tube. Which by the way he has named it his "tubot" lol. He thinks he can shoot us with it lol. Boys! lol.

Finally a few hours later he had a huge blowout! It was pretty gross-lucky for me Nana was here to help me since dad ran home for a few things lol. I was SO happy to see him finally poop. I dont think Ive ever been so happy to see him poop. We had to give him a sponge bath and wipe him down-it was a mess! Mimi and Uncle Jon came up while my mom and Arlene were here. Of course Mimi gave Blake lots of trouble. She is so funny. Blake had a really good night. We are scheduled to go home tomorrow. Im hoping Blake will be ready to walk and be out of bed, he has been in bed since we got here. The only thing he is really not liking is his face mask. Of course the one thing he needs to wear a lot. He coulnd't care less about his g-tube or port. Lol. But if you show him his mask he says NO and covers his mouth. Im hoping if we decorate it with some cool stickers he will be more willing to wear it. So as our day comes slowly to an end-its been overall pretty good. We have our next dose of chemo at midnight. And every six hours after that for 3 days. Its gonna be almost a year of chemo with this protocol. So this is the beginning. Thanks you again for all your support! We appreciate all of you so much!

Tue Feb 2, 2010



Getting prepped for surgery





Still sedated



Well, Blake is up on 4 Henson at Children's Mercy. We had a long day today. We arrived at 9am, Blake was taken back to the prep room at 10:30. They took him back to sedated him around 10:45, and they came and got us before he woke up at 2pm. He is such a tough lil guy. He woke up mean as ever-he always does when he is put under with anesthesia. We were taken up to our floor and Blake took a nice long nap in my arms. I love when he lets me hold him! He is getting so big that is a rare thing anymore. :) He woke up to Gigi and Papa coming to visit. He loves seeing them! Then we had a parade of more visitors. Grandma Lyn-Ms. Hyun-Aunt Arlene, Nana, and Christian! Blake was so excited to see everyone. He wasnt able to really do more than lay in bed. He is really sore! He keeps telling me owie mama-owie. It totally breaks my heart. His is so strong. So tomorrow we found out that we begin chemo treatments. They decided since we are already here that it would be good. They will have more time to train me on how to use his g-tube. I am so glad that is actually worked out this way. I will feel a lot more comfortable taking Blake home once they have given me time to ask questions and try it out! So we will be staying longer than we expected. Im relieved that we have a chance to learn while we are still in the hospital. Thank you all for keeping us in your prayers-we have successfully made it through another surgery! :) You are all so great! I am so thankful for all of you!! Thank you for all your support and love! Blake is proof that prayers and positive thinking can do wonders! He is strong and I know he is gonna fight this tumor till the end!! I will post another update tomorrow night and let you know how he does with his first dose of chemo!!

His vortex port-central line




Watching cartoons after he woke up





His g-tube, eventually will be mickey button

















Mon Feb 1, 2010

Well the lab work went smoothly. Blake only cried a little when they did the blood work. We are set for tomorrow. We also found out that we will be starting the actual chemo treatments next week. So its all moving pretty quick now. I want to thank you all for all your positive comments and prayers. I feel so blessed having all of you supporting us! When ever im having a bad day or a down moment I log on to Carepages and read back over all your messages. They really help me stay positive! So really thank you all!! Im off to bed-big day tomorrow!! I will let you know how everything goes!