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Wednesday, May 25, 2011

Wed, May 25, 2011


right before the temper tantrum set in...
Life sure does have a funny sense of humor. We had quite the day today. We started the day off with Blake waking up at 6:30. Way earlier than his normal '7:45 wake up call'. I should have known at that point it was going to be a long day. lol So we got ready, Blake only wanted his 'pink' milk (strawberry) for breakfast. He normally has a big bowl of cereal-boogers; ie crunch berries. He has quite the imagination these days. lol We headed to Children's Mercy for his 1st dentist apt. We talked about it for 2 days, I thought he would do great since he loves having his teeth brushed. When we get there I realize I don't have a 'dental' card. Ugh. So after a few phone calls to our insurance company, Phil, and finally our normal dentist, I am able to give the receptionist enough info. We get called back, and as soon as we are in the room Blake has a melt down. Crying and not cooperating. I was a little stressed. I didn't know who this kid was-he was not acting like the Blake I knew. So after the assistant left the room, I calmed Blake down and we had a little talk. It actually worked. Yippee!! So he cooperated with the dentist. She checked out his teeth-NO CAVITIES!! I was so happy. She had just finished a fluoride treatment when we find out that there is a tornado warning, we all have to go to the stairwell in the basement of Children's Mercy. Oh boy! So down we go with all the other patients. We are all crowded in the stairwell and Blake decides he wants Mac 'n Cheese. Oh no! Let the 2nd temper tantrum of the day begin. He is crying and I am trying my best to calm him down, thank god for technology. I pulled out my phone and let him play a few games. Phew. 10 min later, the tears are back. lol We were in the stairwell for almost an hour. Finally a nurse came down with a basket of Teddy Grahams and Gold Fish. THANK YOU!! That kept Blake quiet for a few more minutes. Again-this is NOT like him. He is normally so good. Must be the weather! lol Ok so we finally get the okay to go back to our apt. We find out that we are done with our apt. 
However, now have to stop by the oncology clinic for a port flush-which I had NO idea was even scheduled for today. I thought for sure it would be quick, right?! So we check in and I apply numbing cream to his port. We go back to the waiting room and Blake is happy to be playing with the toys. Then the nurse actually gets to us pretty quick-a fast poke and he is ready to be flushed. Well, unfortunately Blake's port wont flush. Shoot! So they call in a medication that will dissolve the blood if its clogged in his line. In order to do this we have to wait 30 min for it to do what it does, then if it still doesn't flush we wait another 30. No flush-Blake's port isn't working. Aw man, and then to top it off Blake pees his pants. I have NOTHING with me-remember I thought this was going to be a quick dental apt. lol So the nurse finds a pair of undies and pants that fit Blake. I am SO grateful!! Also at this point I am starving because its already 2:30, so we run down to the cafeteria for a quick snack. When we get back just in time to do the whole process over again. Another hour passes. Still NOT flushing. There is talk about us getting pictures of his chest. Due to the time we cant get it done today so our nurse Paige decides to de-access him and let us go home, we have to return tomorrow to get more tests done. His port still isn't working. I am praying that tomorrow we will figure out what is going on. I guess they are going to flush some type of fluid that will show up on x-ray.

I probably shouldn't be complaining, but sometimes a girl just needs to vent about her bad day! lol Thanks for letting me do that!

Ok so on a brighter note, I have been applying for financial assistance to help with some of the medical bills, Blake's braces, and to help with our trip to Houston in July. We received a call yesterday from an organization called 'Be Head Strong'. They sent us $500 in gift cards to Target. How great! A lot of the brain tumor/cancer organizations that I have applied to have stipulations that prevent them from helping 'glioma' tumor patients (havent found a reason yet). Which happens to be the type of tumor Blake has. Others are not offering help to new applicants due to the economy. I know God has a plan for us, and wont give us anything we cant handle. My faith remains strong, although I do have my days when I don't know how it will all work out. Then I remember its all in HIS hands. I continue to look for a job that will work in conjunction with Blake's schedule. A friend of mine might need childcare for her daughter 3 days a week starting in August. So my fingers are crossed that it will work out. Until then, babysitting jobs are helping and Phil has been able to pick up some overtime at work. I will keep you guys posted on how tomorrow goes! Thanks for all your prayers for Blake and our family! xoxo

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