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Monday, May 16, 2011

Monday May 16, 2011

"Fight for Blake"
May is Brain Tumor Awareness Month!! I have bracelets that say "Fight for Blake" on one side and "Catch Me Running" on the other. If anyone would like to show their support by purchasing a bracelet they are $5. I have 3 different sizes small(child) medium(adult) and large(Man Sized). Its an easy way to raise awareness! They are grey and lime green!



Blake continues to fight his brain tumor, he had his MRI a couple weeks ago, and everything continues to look stable! Thank you God!! If we can make it to one year with NO growth it would be a really great. Blake is doing fatastic! His birthday is approching and all he talks about is Batman and superheroes. lol So, I get to figure out how to make a 'Superhero' party. Last year we celebrated his birthday in Houston, so I am excited that this year we will be home for the celebration. His birthday is June 16, but due to fathers day being the 17 I have decided to have his party on the 25th. He is already super excited about his birthday.

Waiting for his numbing
cream to take effect.
Blake is doing great in school, he is on break from rehab since May 7th he got botox. He received 5 in his arm/thumb, 3 in his back and 2 in his leg. He was not happy about it. Its such a hard thing to watch your child go through something that is painful. Once the last injection was done I picked him up and held him-and he was fine within minutes. I love that he is a momma's boy! I know it will change soon, so im soaking it up while I can. His next MRI will be July 13th in Houston. I am so excited to go to Texas and see all of our family there. Phil gets to go with us this time-so that makes me really happy!






All the gear...



Dr. Rinaldi injecting his leg


Poor kiddo!




As many of you know my best friend started an organization called 'givingSOLO'. You can go to the website: http://www.givingsolo.org/ and check it out. We have our 1st event coming up June 2nd at The Gallery at 19 Below. They are hosting an Childrens Art Exhibit and Auction that will be benefiting SOLO. We are very excited. Blake has created a masterpiece for the show-and it is quite the masterpiece! I am gonna have a hard time seeing it go! Also, Phil and I are putting in some art as well. It is going to be such a fun night! Blake starts constraint camp June 6th. Its a 5 days a week camp-for 4 weeks. I am just praying the gas back and forth doesnt break us! We are due for another AFO apt at Children's Mercy to look into getting a new AFO for Blake's leg/foot. The boy just keeps growing. lol Lynne, his PT, said it might be time for Blake to get a new style of brace. That is exciting, because that means his leg is getting stronger! I keep praying that one day he wont need the brace anymore and he can walk like all the other kids-brace free!! Its funny to me the things I look forward to, new braces, Blake being accepted into PT and OT at school lol. I am so grateful for all the strides Blake has made this last year and I look forward to many more!!

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