Well, its been an interesting week already. On Sunday, I took Blake to see Toy Story 3-in 3D. Blake didnt care for the glasses. He seemed to love the movie though! My cousin Jamie had her son Trey bring over a family photo she took of us on the beach, it is such a great photo. I am so excited to hang it in our house. She blew it up-not sure on diminsions yet. But I am so excited to have it! Then we all went to Quiznos for dinner. Sunday evening the Proton Center called us to let us know the Proton machine was broken. :( No Proton therapy on Monday. We still had his neuro-opthamalogy apt-and his weekly see with Dr. Mahajan. We are no longer done July 16, at first I was really bummed out. Our new last day is July 19-soo we are going to go ahead and schedule his MRI for that week. We are planning on coming home the 24th. I figure just in case the Proton machine breaks down again we have a few days to spare now. It hard relying on a unpredictable machine...ya just never know when its gonna break down. All the staff is great though. They take really good care of Blake. Today, oh boy-our day started off with me realizing my keys were in my aunts car from dinner last night. She was already at work...so she came home and dropped my keys off-then we speed off to proton therapy arriving just in time! lol I felt like such an idiot. She is soo good to me! I would be lost without her!! So thankful for her!
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| Slowly loosing his hair |
Blake's hair is slowly falling out in the area he is receiving proton therapy. Which seems to be right in the front above his scar-so Wed night I am going to buzz his hair all off. Goodbye mohawk. This will be the 1st time he wont have a mohawk-he was born with a full head of hair and as soon as it was long enough-he had his mohawk. I know that it seems kinda sad, im just taking it as a sign that the proton therapy is doing its job! He didnt lose any hair during chemo-and then we found out the chemo wasnt working. I have pictures posted on my facebook-if you have fb-look me up: Mandy Blake-Danforth. I am on fb almost everyday. lol My cousin Jackie is coming down to stay a few days with us. She will be here tomorrow night. We have some fun stuff planned. It will be nice to have some help at our apts. I will be sure to let you all know what we end up doing. Thanks for keeping up with us! Talk to you soon!!
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