Sorry everyone-havent had the time to update ya! lol We have been pretty busy lately. So lets recap:
Sat: Took Phil out for an early Fathers day! They have an actual Vans store here-and he LOVES Vans. So we got him a new pair of shoes! We ate lunch and Phil wanted to let Blake try some dip-n-dots. He loved them of course! He got the birthday cake flavored ones. It was a mess-but totally worth it. Sat evening my Aunt Jean, Aunt Bonnie Cousin Jamie, and cousin Taylor all came over for a little birthday party! Jamie brought over the cutest cake w/ matching cupcakes. It was an underwater theme with little rings. SOOOO Yummy!! Oh my god-im not a big cake person-but this cake I could have eaten alone lol. So glad that didnt happen. Everyone down here loves him SO much! After eating the delicious cake, Blake got some gifts! Aunt Bonnie got him a really cool set of Hot Wheel cars, then Taylor brought in a kitchen center! Omg!! Blake of course loved it!! How we will fit it into my lil civic...hmm not sure. lol We will figure it out though. lol Then we went outside and my Aunt Jean got him a wagon. It is so cute. Army green with a door, cup holders and a storage area. He loves it! He was having everyone pull him around, sitting quietly enjoying the ride. My car is going to be so crammed full of stuff its probably a good thing its only Blake and I riding in the car. Lol. That wasnt the end of our day though!! Phil and I were able to get out for a little bit and do some birthday shopping for Blake. Then we went to Saltgrass Steakhouse for dinner-JUST THE 2 OF US!! That almost NEVER happens. Let me just say I had totally forgotten how peaceful dinner can be when you dont have to entertain a 2 year old. We had such a great dinner. The food was AMAZING! We spent a little more than we wanted to but it was SO worth it to have dinner alone! We got home around 10. Blake was in bed, he had a lot of fun with his Mimi-Aunt Jean. lol He calls her Mimi now cuz thats what her grandkids call her-so now he has Mimi-Aunt Megan and Mimi-Aunt Jean. Cute huh?!
Sunday: Had a pretty mellow day-Blake had a rough day. Woke up and went to church. Blake cried when we dropped him off at Sunday school. Went to service, lost my keys for a little bit, found them, picked up Blake who was crying again. Came home for a nap. Then took my Aunt to lunch at this place called Papas Seafood. I had chicken salad. lol Im not a fan of seafood. It was all really good food. Blake was naughty at the resteraunt. It was kinda stressful. Came home and Phil and him had 1 on 1 time while Jean and I went to hang out for a little bit. Blake had a rough day-im not sure if its side effects or what. Time will tell I guess. I have NEVER seen him act like that. It was like a rollercoaster all day. So glad the day was ending-we were all ready for a new day.
Monday: Oh boy-this was quite the day. Ugh! So we had an 8:30am weekly apt with Dr. Mahajan. She is his radiation doctor. We talked to her about Blakes behavior, and what to expect from the Proton Therapy. I guess I was wrong. The proton therapy wont make his tumor disappear-basically it will kill it, maybe shrink it, but it will still be in his brain. The best thing we can hope for it that it kills it so that it stops growing. Then we will wait and watch. Making sure that it doesnt start growing again. Hopefully, in time technology will come up with more cures for Brain tumors. Until then, we just want a stable tumor!! After our apt with Dr. Mahaja, our next apt wasnt until 1pm. So we rode the shuttle over to MD Anderson to see the pediatric surgeon about Blakes g-tube. Its been draining. Ewww. So they looked at it-and put a little more water in the balloon. Hopefully it helps. Then we rode back over to the Proton center. Keep in mind-Blake CANNOT eat until AFTER his proton therapy because they have to sedated him. So its like 12:20 and he is STARVING, as are we because we are not gonna eat in front of him. The proton center is running behind. At 3pm Blake is finally taken back. Can you imagine. It was so stressful and frustrating. Our poor kid was SO hungry. He kept saying my turn, mama my turn. He knew that once it was his turn he could eat. I kept trying to explain we had to wait, but even I was getting a little angry. It would have been one thing if I could have let him sleep in late-but being up since 6:30 so we could leave by 8 to be at the PTC by 8:30-then not feed our kid till after his apt. Thats asking a heck of a lot out of a 2 year old. Hell, thats a lot to ask out of an adult. lol. We made it though. He came out at 4ish. We headed home to get dinner-he ate some grapes and some snacks. By the time we got home it was 5:30. He didnt want to eat dinner. I was trying everything to get him to eat something-but I think he was so exhausted and hungry he couldnt eat. So we ate. Thinking he would eat later. Unfortunatly he never did eat anything more.
Today-Tuesday: Woke up at 6 HUNGRY!! I should have known. We distracted him with Toy Story 2 the movie. He watched it while we got ready to go. Our apt was at 11am-so we had to be there at 10:20. Again they were running late-11:45 is when they took him back. So...better. But still frustrating. He was having a really hard time-he was SO hungry. He came out and we fed him some muffins, and some chips. He drank all his juice. We got home and he took a nap-all of us did. We get so exhausted trying to keep him okay while we wait for his treatment. Chasing him, holding him, playing, its a lot of work. Then we took Phil to meet my cousin Jimmy at his work for the Clutch concert. Clutch is one of Phils all time fav bands! So of course he was SO excited they were having a show while he was here. Jimmy got Blake a birthday present too! A Tag Junior Leap Frog reading thing. Its pretty cool! He gave him a few books too! Im excited to see how it works. I just downloaded all the software so Blake can play with it tomorrow. Blake wanted to open it ASAP! lol He carried the little hand held reading thing around for a long time. lol So cute! We ate dinner then went to the mail box-another present! We stopped at the park-played for a while. Then came home to cool off. Blake opened his gift-from grandma and grandpa Danforth, and Val and the girls. There was a bunch of stuff in the box-sunglasses, paintbrushes, books, bath foam, foam airplanes, beach towel, Toy Story plate, bowl and glass, a fake knife, Princess and the frog movie, and a cool glowing blinking ball necklace. The girls made cards and pictures-he loved all of it. Pretty good day huh?!
Tomorrow is his actual birthday. He is gonna be 3!! We made a cake tonight with cupcakes. We are gonna have a little family birthday! Phil and me got him a Buzz Lightyear wing pack thing. He loved Brady's! We also got him some fake food to play with his kitchen! So he will have another day of gifts tomorrow! He deserves it! This kid is going through so much right now. Im just so proud of him. He has had a rough week at Proton Therapy-but we are gonna get through it! I will talk to you all soon! We are doing well so far! Thanks for all your support!!
Sat: Took Phil out for an early Fathers day! They have an actual Vans store here-and he LOVES Vans. So we got him a new pair of shoes! We ate lunch and Phil wanted to let Blake try some dip-n-dots. He loved them of course! He got the birthday cake flavored ones. It was a mess-but totally worth it. Sat evening my Aunt Jean, Aunt Bonnie Cousin Jamie, and cousin Taylor all came over for a little birthday party! Jamie brought over the cutest cake w/ matching cupcakes. It was an underwater theme with little rings. SOOOO Yummy!! Oh my god-im not a big cake person-but this cake I could have eaten alone lol. So glad that didnt happen. Everyone down here loves him SO much! After eating the delicious cake, Blake got some gifts! Aunt Bonnie got him a really cool set of Hot Wheel cars, then Taylor brought in a kitchen center! Omg!! Blake of course loved it!! How we will fit it into my lil civic...hmm not sure. lol We will figure it out though. lol Then we went outside and my Aunt Jean got him a wagon. It is so cute. Army green with a door, cup holders and a storage area. He loves it! He was having everyone pull him around, sitting quietly enjoying the ride. My car is going to be so crammed full of stuff its probably a good thing its only Blake and I riding in the car. Lol. That wasnt the end of our day though!! Phil and I were able to get out for a little bit and do some birthday shopping for Blake. Then we went to Saltgrass Steakhouse for dinner-JUST THE 2 OF US!! That almost NEVER happens. Let me just say I had totally forgotten how peaceful dinner can be when you dont have to entertain a 2 year old. We had such a great dinner. The food was AMAZING! We spent a little more than we wanted to but it was SO worth it to have dinner alone! We got home around 10. Blake was in bed, he had a lot of fun with his Mimi-Aunt Jean. lol He calls her Mimi now cuz thats what her grandkids call her-so now he has Mimi-Aunt Megan and Mimi-Aunt Jean. Cute huh?!
Sunday: Had a pretty mellow day-Blake had a rough day. Woke up and went to church. Blake cried when we dropped him off at Sunday school. Went to service, lost my keys for a little bit, found them, picked up Blake who was crying again. Came home for a nap. Then took my Aunt to lunch at this place called Papas Seafood. I had chicken salad. lol Im not a fan of seafood. It was all really good food. Blake was naughty at the resteraunt. It was kinda stressful. Came home and Phil and him had 1 on 1 time while Jean and I went to hang out for a little bit. Blake had a rough day-im not sure if its side effects or what. Time will tell I guess. I have NEVER seen him act like that. It was like a rollercoaster all day. So glad the day was ending-we were all ready for a new day.
Monday: Oh boy-this was quite the day. Ugh! So we had an 8:30am weekly apt with Dr. Mahajan. She is his radiation doctor. We talked to her about Blakes behavior, and what to expect from the Proton Therapy. I guess I was wrong. The proton therapy wont make his tumor disappear-basically it will kill it, maybe shrink it, but it will still be in his brain. The best thing we can hope for it that it kills it so that it stops growing. Then we will wait and watch. Making sure that it doesnt start growing again. Hopefully, in time technology will come up with more cures for Brain tumors. Until then, we just want a stable tumor!! After our apt with Dr. Mahaja, our next apt wasnt until 1pm. So we rode the shuttle over to MD Anderson to see the pediatric surgeon about Blakes g-tube. Its been draining. Ewww. So they looked at it-and put a little more water in the balloon. Hopefully it helps. Then we rode back over to the Proton center. Keep in mind-Blake CANNOT eat until AFTER his proton therapy because they have to sedated him. So its like 12:20 and he is STARVING, as are we because we are not gonna eat in front of him. The proton center is running behind. At 3pm Blake is finally taken back. Can you imagine. It was so stressful and frustrating. Our poor kid was SO hungry. He kept saying my turn, mama my turn. He knew that once it was his turn he could eat. I kept trying to explain we had to wait, but even I was getting a little angry. It would have been one thing if I could have let him sleep in late-but being up since 6:30 so we could leave by 8 to be at the PTC by 8:30-then not feed our kid till after his apt. Thats asking a heck of a lot out of a 2 year old. Hell, thats a lot to ask out of an adult. lol. We made it though. He came out at 4ish. We headed home to get dinner-he ate some grapes and some snacks. By the time we got home it was 5:30. He didnt want to eat dinner. I was trying everything to get him to eat something-but I think he was so exhausted and hungry he couldnt eat. So we ate. Thinking he would eat later. Unfortunatly he never did eat anything more.
Today-Tuesday: Woke up at 6 HUNGRY!! I should have known. We distracted him with Toy Story 2 the movie. He watched it while we got ready to go. Our apt was at 11am-so we had to be there at 10:20. Again they were running late-11:45 is when they took him back. So...better. But still frustrating. He was having a really hard time-he was SO hungry. He came out and we fed him some muffins, and some chips. He drank all his juice. We got home and he took a nap-all of us did. We get so exhausted trying to keep him okay while we wait for his treatment. Chasing him, holding him, playing, its a lot of work. Then we took Phil to meet my cousin Jimmy at his work for the Clutch concert. Clutch is one of Phils all time fav bands! So of course he was SO excited they were having a show while he was here. Jimmy got Blake a birthday present too! A Tag Junior Leap Frog reading thing. Its pretty cool! He gave him a few books too! Im excited to see how it works. I just downloaded all the software so Blake can play with it tomorrow. Blake wanted to open it ASAP! lol He carried the little hand held reading thing around for a long time. lol So cute! We ate dinner then went to the mail box-another present! We stopped at the park-played for a while. Then came home to cool off. Blake opened his gift-from grandma and grandpa Danforth, and Val and the girls. There was a bunch of stuff in the box-sunglasses, paintbrushes, books, bath foam, foam airplanes, beach towel, Toy Story plate, bowl and glass, a fake knife, Princess and the frog movie, and a cool glowing blinking ball necklace. The girls made cards and pictures-he loved all of it. Pretty good day huh?!
Tomorrow is his actual birthday. He is gonna be 3!! We made a cake tonight with cupcakes. We are gonna have a little family birthday! Phil and me got him a Buzz Lightyear wing pack thing. He loved Brady's! We also got him some fake food to play with his kitchen! So he will have another day of gifts tomorrow! He deserves it! This kid is going through so much right now. Im just so proud of him. He has had a rough week at Proton Therapy-but we are gonna get through it! I will talk to you all soon! We are doing well so far! Thanks for all your support!!
No comments:
Post a Comment