Sun May 23, 2010

Looking out of the 7th floor at MD Anderson

Good evening my faithful readers! There is so much to fill you all in on! Let me start with last Monday: Blake had his MRI at MD Anderson. Tuesday we met with the Neurosurgeon who let us know that he agreed with Dr. Hornig-that surgery is not an option right now. He let us know that Blakes MRI results showed Blakes tumor had grown since our April MRI at Childrens Mercy. We had a feeling that would be the case. I am SO glad that I persued MD Anderson right away, rather than waiting until Blake was done with another round of chemo, which would have been another 2 months. So since his tumor has grown again, we know the chemo is NOT working. We learned from the neurosurgeon that our Oncologist, Dr. Wolff was suggesting radiation. We had no apts scheduled for Wed, so we decided to relax and catch up on some much needed sleep. Thursday Blake was supposed to get chemo, but we cancelled his apt since we knew the chemo wasnt working. The nurse told us if Dr. Wolff still wanted Blake to receive it we could just do it Friday at our apt. So Thursday we went to Kemah, Blake had a blast. It was a great day! Friday we had to be at the hospital by 7 for his lab work apt, so we had to be up by 430am. After the lab work we had our apt with Dr. Wolff. He let us know our options now that we knew the chemo wasnt working. We could try another chemo regimen or we could do radiation. He said his recommendation was to do the radiation. We met with our radiation doctor after our apt with Dr. Wolff. She recommended Blake receive Proton therapy. I had already done a ton of research on proton therapy, so we were already on board with it. Once we got all the info we needed we headed out-back to Kansas City. 13 hour drive...ugh! We made it home around 3:30am. I was so exhausted. Blake is such a trooper. He went the whole ride without crying or fussing. I was SO proud of him. So we are home, well for a week. I am very excited for Blake to get the proton therapy. I am SO sad that we are going to be gone for 7 weeks though. We have been looking so forward to June/July. We are going to be missing the Art Show, the Thomas Train ride, Blake's birthday, 4th of July, and Make-A-Wish building Blakes playground. I now that it will be worth it in the long run, but Ive been looking forward to all of this since early in the year. It just stinks! On a positive note spending the 4th of July in Texas will be pretty cool. And Blake gets to turn 3 in Texas! So I think overall its gonna be great. Everything happens for a reason right?! Best of all-I get to stay with my aunt Jean, who is just amazing! My whole family down there is just amazing! Blake adores all of them! So its gonna be really great to get closer to them, and build a relationship with my family! I feel pretty blessed! I figure Phil will fly down a few times, maybe Blake and me can fly up a couple times. We will make it work. Thank you for all your support! Blake is doing SO well! MD Anderson has a plan for us and I am just so thankful for everything! Talk to you all soon!