Today has been quite the day. We had Blake's speech evaluation for Great Beginnings at 9:15 this morning. He didnt make it through the whole thing, so we have to go back next week to finish. He woke up with a croup cough and super runny/stuffy nose. With Vincristing yesterday-he has been miserable all day. Poor guy! We were supposed to have his OT/PT apt at 12:00 but I cancelled it so he could sleep. He took a 2 1/2 hour nap. The rest of the day we just relaxed and played quietly.
At 4:55 Karen, our contact for MD Anderson, called and let me know that Blake's case was presented and they have scheduled an apt for him to be seen next Friday at 9am and 10am. Soo we are going to drive 12 hours straight through on Thurs to Houston, TX. Oh boy! We will go to our apts on Friday, and then drive straight back on Sat. Its gonna be an adventure Im sure. lol I didn't realize how expensive airfare has gotten. I havent flown since I was in high school. Geez its SO expensive. lol Lucky for us my Aunt Jean is gonna let us stay with her. So we dont have to worry about hotels and what not. I just love my family! I seriously feel so blessed to have all the support I have. Everyone please say a prayer that they have more options for Blake. I am living on hope and faith! I will keep you all updated on what they say!!
At 4:55 Karen, our contact for MD Anderson, called and let me know that Blake's case was presented and they have scheduled an apt for him to be seen next Friday at 9am and 10am. Soo we are going to drive 12 hours straight through on Thurs to Houston, TX. Oh boy! We will go to our apts on Friday, and then drive straight back on Sat. Its gonna be an adventure Im sure. lol I didn't realize how expensive airfare has gotten. I havent flown since I was in high school. Geez its SO expensive. lol Lucky for us my Aunt Jean is gonna let us stay with her. So we dont have to worry about hotels and what not. I just love my family! I seriously feel so blessed to have all the support I have. Everyone please say a prayer that they have more options for Blake. I am living on hope and faith! I will keep you all updated on what they say!!
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