Mon July 27, 2009

So today was the big 'hemotology/oncology' appointment. We finally heard the results from the 2nd pathology report: a low grade glioneuronal neoplasm. Basically, its exactly what the report said it was in the first path report. Right now there are NO malignant(cancer) cells. We are very happy/thankful/relieved about that. As far as treatments go, we already had the surgery so for now that is all that is needed. We will be taking Blake in for MRI's every 3 months for the next year, then if everything looks good we will be bumped down to every 6 months then finally once a year. Brain tumors are tricky things and are not reliable. What is slow growing now-may not be later. Thats the scary part. I try hard not to think about it. I wish so bad they could tell me that the tumor is all gone and that we never have to worry about this again. Dont get me wrong, I am so grateful that everything so far has been so positive. Its just that I hate not knowing if Blake is gonna have to go through more later on down the road. I keep praying that when we go in for that MRI, there is no more tumor. :)
We also had an appt with our pediatrician Dr. Hartman. I must say that I do love her!! :) She was so happy to see Blake, and how well he is recovering. She does want us to go see a ophthalmologist to get Blakes vision checked out. Just as a precaution. Before surgery he ran into tables and things that were just above eye level. So we are just gonna go get it looked at. Im not really worried about it. We have that to look forward to next month.

Blake and some friends at the Park Party on Fri

So the last week has been good. We went to therapy. Blake goes back all by himself now, so im not really sure what exactly they are working on. They do give me things to work on at home. So thats what we do. First Steps should be coming to give us an evaluation. We are still in the process of getting that set up. On Friday we attended our first 'Park Party'. That was SO much fun!! Blake had a blast. We are going to try to attend all of them. We just cant do the playground-Blake doesn't know his limitations, and there are a lot of big kids. Unsupervised big kids. :/ So you will find us hanging out in the field, flying kites, blowing bubbles and just relaxing. I was so excited to see all the kids at the park. I so badly miss my class, and all the UHDS kiddos. I cant wait to come back!! Pam, Terri, and Debby have been SO amazing through this all. Just knowing that my class/job is waiting for me, takes a huge weight off my shoulders. Everyone at UHDS has been SO amazing. I honestly dont know what I would do without them. I dont think words alone can express how thankful I am of all of you. You help keep me strong, just by being there. Ok so enough of the mushy stuff, im all teary eyed. Oh gosh! :P Ok. So until my next update. Thanks again.