June 24, 2009

Today started off like all other days. Woke up, ate breakfast, got dressed, and went to school. (Blake goes to the school I work at.) I had an appointment to see his pediatrician at 1:45pm. We went to the appointment and Dr. Martin immediately said she would like us to go to Children's Mercy downtown for a CT. I asked if I could take him after I got off work at 6pm, she said that would be ok. We headed back to school, on our way she called my phone and said to be at Children's Mercy by 5pm so Radiology could look at the results. This had me concerned. I got back to school and waited to find out if they had someone to cover my class and what not. And after only 15 minutes they were sending me out the door. Before I could even think anything through I was headed to the Children's Mercy ER. Dr. Martin had called ahead for me so our wait wouldn't be so long. We arrived around 2:45, and were back in our ER room by 3:15. Phil arrived around 3:30, and soon after they took Blake back for his CT. For the CT they needed him to lay completely still-not an easy thing for a 2yr old to do. Luckily he hadn't had much of a nap, due to the doctors appointment, and Phil was able to help get him to sleep. He slept through the whole thing, not moving once. We returned back to the ER room, and within an hour Dr. Hornig came in and was evaluating Blake. At this time we still did not know the results from the CT. Dr. Hornig (our amazing neurosurgeon)and the head doc from radiology asked if we had heard the results. We said no, and he asked if we cared if he told us. We didn't care who told us-we just wanted to know. He then let us know that Blake had a very large tumor on his brain and that they would be doing surgery tommorow. I cant even describe the feeling I had. I was completely shocked and numb. They then went on to tell us they ordered an MRI to look at the tumor in depth. There was a lot of phone calls being made to figure out if they were going to do the MRI that night or the next morning. After much waiting for us and a lot of phone calls for them, they decided to wait and do it all on Thurs. We hung out in the ER room till 9pm. At that point we were admitted to 2 Henson room 20. As soon as we were up there Phil left to go home and get our stuff. There really was no time for us to process what was about to happen. My sister and brother-in-law came up with my niece and hung out till 10:30 or so. It was nice to have a distraction while Phil was gone. My best friend Christian came up later that night and hung out till Phil arrived back at the hospital. We tried to get sleep-I only was able to get 2 hours. How can you sleep the night before you know your baby is going into surgery-brain surgery at that. The night crept by.





Blake was checking out his hospital crib



Poor kid didnt get dinner since we were in the ER for so long-so the nurse brought some snacks-Jello was the only thing Blake wanted to eat



Aunt Mimi and Blake







Playing with Kirsten locked inside the crib

Locked in his crib