Sun Jan 31, 2010

A VERY excited Kirsten!

Blake and Kirsten had a BLAST at Sesame Street live, as did Jackie and myself. The kids were dancing and singing-trying to talk to the characters. It was so cute. On Sat they both looked hung-over lol. Im sure it was from all the cotton candy they ate! Both kids got a tshirt and stuffed animal. They were VERY happy kiddos! I am so grateful to Marcia for the tickets! It made our day for sure!!

Washing off all the sticky cotton candy!



Well, tomorrow it all begins. We are heading to Children's Mercy in the morning for Oncology to run all the labs they need before we start Blake's chemo regimen. Tues morning Blake goes in to get his port and g-tube. They will put him under to perform both surgeries. We will stay overnight at least 1 night for Blake to be monitored. Im a little nervous for Blake-but I know he is in good hands! Say a prayer for him-the g-tube is gonna be the sore one. I know he is a trooper when it comes to tough things. :) I will let you all know how it goes!

The 'hang-over' look. lol Notice they are both still wearing
their shirts from the night before.



Thur Jan 28, 2010

Just got off the phone with St. Judes. They said they agree with the treatment Childrens Mercy has for us. So we will be staying in Kansas City. I called Dr. Shore and let him know we are proceeding with them. They are going to call me back and let me know the dates for Blake's port to be put in, and apts for his chemo. I am SO happy to have a plan. St. Judes is very familiar with Dr. Shore and told us we are in really good hands. St. Judes will keep Blake's info and stay in touch with us-in case a new protocol comes open. Blake is doing well right now-so all the doctors agree now would be the best time to start chemo. While he is still strong. :) Phil and I didnt really have a preference, we just wanted the BEST for Blake. I know one of the things I liked about St. Judes is NO medical bills, and the fact that they take care of EVERYTHING while we would have been there. With Children's Mercy-there will be a lot of bills. I know everything will work out. It will be nice to come home after treatments and stay in our routine and have Phil here. So we are happy with the decision.
More good news-Blake's TLC therapist Marcia called me Wed. She said her husband had free tickets to go see Sesame Street Live. She thought of Blake and how much he loves Sesame Street and asked if I wanted the tickets! Of course I said YES!! Then I realized I am babysitting Kirsten on Friday...so Friday I am taking Blake and Kirsten to see the show. lol. Jackie(my cousin) is going with me-thank goodness!! lol. I am pretty excited about it! This week has been a pretty good week!
Thank you all for your amazing support!!

Thur Jan 21, 2010

Well with good news comes bad news.
The Good:
This morning I received a call from the "Make A Wish" people. They called to confirm that Blake gets to make a wish!! They are sending us some more info in the mail. I have a little bit of an idea how it all works, since one of the mom's at Rehab's little boy just had his wish granted. I will keep you all updated as we receive more info. This is going to be so exciting!
The not so good:
This morning not too long after we received the Make A Wish call, I received a call from Social Security. We have been going through the process of applying for SSI-disability. After talking to the rep. she let me know that since Phil is getting overtime, we dont qualify for disibility. I asked if Phil stoped getting overtime if we would qualify, and she said that we barely would. I guess we are right under the cut off for what you can make monthly. So that really stinks. I was hoping it would help us out on top of Phil's overtime. We cant cut back on his overtime-that would just be silly. I know that everything will work out-its just really stressful when you have no clue how it will work out. I am trying my hardest to be positive. This hasn't been the best week for us-as far as news goes.
I do have one more positive/good news to end with:
My fabulous bosses and Union Hill Day School got ahold of me on Tues. asking if I had any time this week to come up to school and do some side work! So tomorrow I get to go to work while Blake is in therapy!! Its only for a few hours but it will be so nice to make some extra money!! I really am so lucky to have such amazing bosses! Thank you all for all your positive comments and prayers! I will talk to you soon!