Just got off the phone with St. Judes. They said they agree with the treatment Childrens Mercy has for us. So we will be staying in Kansas City. I called Dr. Shore and let him know we are proceeding with them. They are going to call me back and let me know the dates for Blake's port to be put in, and apts for his chemo. I am SO happy to have a plan. St. Judes is very familiar with Dr. Shore and told us we are in really good hands. St. Judes will keep Blake's info and stay in touch with us-in case a new protocol comes open. Blake is doing well right now-so all the doctors agree now would be the best time to start chemo. While he is still strong. :) Phil and I didnt really have a preference, we just wanted the BEST for Blake. I know one of the things I liked about St. Judes is NO medical bills, and the fact that they take care of EVERYTHING while we would have been there. With Children's Mercy-there will be a lot of bills. I know everything will work out. It will be nice to come home after treatments and stay in our routine and have Phil here. So we are happy with the decision.
More good news-Blake's TLC therapist Marcia called me Wed. She said her husband had free tickets to go see Sesame Street Live. She thought of Blake and how much he loves Sesame Street and asked if I wanted the tickets! Of course I said YES!! Then I realized I am babysitting Kirsten on Friday...so Friday I am taking Blake and Kirsten to see the show. lol. Jackie(my cousin) is going with me-thank goodness!! lol. I am pretty excited about it! This week has been a pretty good week!
Thank you all for your amazing support!!
More good news-Blake's TLC therapist Marcia called me Wed. She said her husband had free tickets to go see Sesame Street Live. She thought of Blake and how much he loves Sesame Street and asked if I wanted the tickets! Of course I said YES!! Then I realized I am babysitting Kirsten on Friday...so Friday I am taking Blake and Kirsten to see the show. lol. Jackie(my cousin) is going with me-thank goodness!! lol. I am pretty excited about it! This week has been a pretty good week!
Thank you all for your amazing support!!
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