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Wednesday, May 12, 2010

Wed May 12, 2010

Hello! Hello! Make-A-Wish came by last night with VERY EXCITING news! Blake's wish is going to be a playset in our backyard. We are SO excited! He loves being outside, however we have NOTHING for him to play with in our backyard. Make-A-Wish is going to have landscapers come in to level an area out-if needed to put the playset. They think they are going to go through Rainbow Playsets. And they said its not gonna be the average playset. They are going to make it the envy of all the kids in the neighborhood! Slides and a fort, swings, we dont even know what all they are going to do! But they are going to customize it for Blake. He doenst have a clue whats about to happen, even though he was here when they told us. lol I seriously think its the BEST wish ever!! He will have so much fun playing that im know im gonna have to drag him inside at the end of the night to eat and go to bed. lol. I will keep you all updated on the progress. They said it will happen really soon!! Woo Hoo!! Playdate anyone?! Blake will be having lots of friends over im sure!! Its gonna be so great!!
Tomorrow we leave for Houston, right after Blake's botox apt. So im thinking around 230ish. Im hoping we get right in and out of our apt. Its gonna be a long day/drive. 13 hours to my aunts house, then our apt is Friday morning at 9am then 10am. We are gonna be exhausted! lol I am so lucky to have family down there to stay with. And thanks to a very generous friend we also have money to put towards gas!! :) We feel so lucky to have all the support we do. Its seriously amazing! St. Judes also contacted me finally and they too are looking into what they might have for Blake. So Ive got 2 major hospitals looking for options for Blake. We are praying that someone-anyone will have a plan. We are keeping the faith! Blake has proven the doctors wrong before-so I know that they dont always know what will happen! God is watching over him-and I keep praying for a miracle! I will let you all know how everything goes. Thanks for all the prayers and support! You are Blakes army of support!

Friday, May 7, 2010

Fri May 7, 2010

Today has been quite the day. We had Blake's speech evaluation for Great Beginnings at 9:15 this morning. He didnt make it through the whole thing, so we have to go back next week to finish. He woke up with a croup cough and super runny/stuffy nose. With Vincristing yesterday-he has been miserable all day. Poor guy! We were supposed to have his OT/PT apt at 12:00 but I cancelled it so he could sleep. He took a 2 1/2 hour nap. The rest of the day we just relaxed and played quietly.
At 4:55 Karen, our contact for MD Anderson, called and let me know that Blake's case was presented and they have scheduled an apt for him to be seen next Friday at 9am and 10am. Soo we are going to drive 12 hours straight through on Thurs to Houston, TX. Oh boy! We will go to our apts on Friday, and then drive straight back on Sat. Its gonna be an adventure Im sure. lol I didn't realize how expensive airfare has gotten. I havent flown since I was in high school. Geez its SO expensive. lol Lucky for us my Aunt Jean is gonna let us stay with her. So we dont have to worry about hotels and what not. I just love my family! I seriously feel so blessed to have all the support I have. Everyone please say a prayer that they have more options for Blake. I am living on hope and faith! I will keep you all updated on what they say!!

Tuesday, May 4, 2010

Tue May 4, 2010

What a great day!! The weather was beautiful. Nana and Mason came over to spend the day with us. We walked around down town Lees Summit, then went to the park and had lunch. We came back to the house and let the boys play in the baby pool in our backyard. Blake had so much fun. It was a good day!
The plan has been set into motion. I contacted our oncologist and they are getting everything together to send to MD Anderson. When we go in Thursday for chemo we will sign all the releases for the remaining info. So I'm hoping they will have everything they need by Friday and we can find out if they have any trials/treatments to offer Blake. I am keeping the faith that there is something out there for him. Thank you all for your prayers and support! <3