Its already November, and my last post seems forever ago. Life has changed quite a bit over the past several months. I am going to do my best to catch you all up! This is gonna be a long one!
August-
School started August 22. Blake was very excited to return to Ms. Ashley's preschool class. He is making friends and has taken a liking to a little girl in his class named Audrey. She is a cutie! Lol She has white blond hair and blue eyes, so you can imagine they are quite the pair! I have been told that they always pick each other for centers.
September-
Blake had a very fun and very busy September. On Sept. 10 First Hand Foundation (the organization that helped us get to Texas) gave us 4 free passes to the Sporting KC vs. Texas game. Kansas City vs. Houston...Ironic-I think not! Lol. We received VIP treatment, our seats were in the Victory Suite!! Buffet lunch, open bar, and Blake got to sit in the Lance Armstrong seat. He was treated like a king! We really had the best time, and KC won!!
Blake also started playing soccer on a special needs team here in Lee's Summit. The team varied in ages 4 to 16. They ran drills and learned the rules of soccer. Blake was excited to wear shin guards and his cool soccer shirt, even if it was a little big. He didn't want the one that was his size. Lol. If he still wants to play next year we will get him some cleats.
Blake also was the “Grand Marshall” for the Dalton Burner Foundation's 5k and Family Fun Run on Sept 11. The Dalton Burner Foundation has helped us pay several medical bills. We have met several incredible people through them, including Dalton himself! They also asked Blake to be in the Comet's calendar. He had a photo shoot down in the West Bottoms with Leo Gibson #14. We cant wait to see the calendar. I will let you all know where you can get one when they come out! We also were given tickets to go see the Comets home opener. Thank you Brian Harris and The Dalton Burner Foundation!! That was seriously the most intense game I have ever been to! It was awesome! I am totally a Comets fan now!! I hope we will be able to go to more games in the future! Blake was able to go down on the field after the game and get a lot of autographs on his Comets shirt!
On Sept. 26 I started teaching again for the first time in 2 years. I found a part-time job at a Montessori Day School in Blue Springs. Its been an adjustment. My hours are 845-130, so Phil and I are working opposite shifts. He does the morning routine with Blake, along with getting Blake off the bus and feeding him lunch. The boys take a nap around 130. I get home around 2ish and then I do the afternoon/bed time shift. I see Phil for about 30 min before he goes to work, that part really stinks. However, receiving a paycheck sure does make it worth it...and we still have our weekends!
October-
On Oct. 11 Blake's best buddy Marley earned her angel wings. Marley and Blake became best buds through the Rehabilitation Institute. After meeting Nikki-Marley's mom we learned that they both had the same type of brain tumor and both had right sided paralysis. They enjoyed doing their 'work' at therapy together, eating lunch together, and Blake loved making Marley laugh. They were quite the pair! A few months ago Marley's tumor quit responding to chemo, and radiation was not an option for her due to the location of her tumor. She touched so many lives during her short time here on earth and I truly believe she was an angel here on earth. We took Blake to her visitation and funeral. He really wanted to see Marley. When we went to go up and see her “sleeping” and he looked at her and said “Hi Marley”. She looked beautiful. It was a very sad day for us. Blake still talks about Marley, and tells me “I miss Marley” often. We talk about her being in heaven and how one day we will see her again.
On the 26th Blake had his botox apt. It was a hard apt, the older he gets the more aware he is, and the more tears we see. Dr. Roge did a great job at being quick, however it was still very hard to see him go through it. He still kept his sense of humor. That morning before we left for his apt, he found a fake mustache in our Halloween box. He wanted me to put it on him, so I did thinking it would be off before we left the house. Nope. He wore it all day...even through botox. He walked through Children's Mercy cracking everyone up. The doctors and nurses were laughing and Blake would look at them and say "whats so funny?" with the most serious face. It was hilarious. I asked him after botox was over if he wanted to take it off...and he looked at me like I was crazy. lol He kept it on all the way through his nap. He amazes me everyday. Never a dull moment. lol
Halloween is my all time favorite holiday. Every year I look forward to what costume Blake wants me to make for him. This year he wanted to be a “Inja Turtle” lol. Ninja Turtle Raphael to be exact. So off to the craft store I went. After planning on how to construct the shell, 3rd time was a charm. His costume came out pretty well, I think. We also built a card board box maze in our driveway for our Halloween Party. It was a huge hit on Halloween. Only took us a day and a half to construct and paint it, and only a matter of hours to take it all down. We used about 255 boxes, and LOTS of tape!! Thanks to some great friends we were able to pull it all off! For the first time Blake went trick-or-treating in our neighborhood.As excited as he was to go trick-or-treating he was more interested in the kids hanging out at our house going through the maze,.We only made it to a about 10 houses before he decided to go back home. Lol Who needs candy when you can make new friends! He really is a special kid!
November-
This month is already flying by. Blake started back at therapy on the 2nd. This has been our longest break, he hasn't been since camp in June. Starting Nov. 15th he will be getting serial casting on his right leg. The cast will help improve his range of motion over a four week process and help his botox last a lot longer. I am anxious to see the results.
Blake has his routine MRI tomorrow morning. I will be sure to let you all know how it goes. Things have been so great over the past several months, I keep praying that it continues. Life has a sense of normality that it hasn't had in a long time...and its been nice! We are so thankful for all the memories we are making, and time we are enjoying with our little man. He is getting so big, and although I am sad that my lil guy is getting bigger, I am grateful for every minute of it! He is becoming quite the comedian. Lol I hope you continue following us on our journey. We appreciate all of your support and love!! Talk to you soon!
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I want a calendar!! Keep me posted about them, please. :)
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