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| Mic-key button! Woo hoo!! |
So Monday we went to CM and Blake's had his g-tube replaced with the actual Mic-key button. They sedated him and the actual procedure only took 20 min. They had to gage the hole where the g-tube was since the mic-key button is a little bit bigger. Poor Blake! He was in pain on Monday.
He finally was able to have a REAL bath!! We let him play in the tub till he was all wrinkly. lol I know it had to feel SO good to just sit and soak. He slept really well Monday night!
Tuesday we went to Rehab-he worked really hard but he definitely was showing signs of discomfort. He is such a trooper. He ended up falling asleep during his last session-PT. Lol. I went over to Union Hill to visit while Blake was in Rehab. I miss all the kids SO much. They have all grown so much-its crazy. I was kind of sad when I left. I was watching all the kids working and playing, realizing that a lot of the kids that were in Blakes 2 year old class are now in preschool. Blake would have been in the preschool class now too. It made me sad. Plus watching all the kids work-using 2 hands, how easy they move around. Blake still cant really use his right hand/arm. He tries really hard but still struggles with a lot of daily activities. I know they are working on strengthening it at Rehab. It really makes me sad to see him struggle with it. I want SO bad for him to be able to use it-and do things independently. After seeing all the kids doing work I have decided to try and put some preschool work in his playroom and Im going to attempt to give him some Montessori lessons. Spooning, pouring, counting work, etc. I know he cant carry a tray by himself-but im gonna try to teach him how to compensate. Even if it means carrying each piece individually. He really misses school. I want him to have some of the preschool experiences. Now if I can just get my fabulous husband to make some shelving. lol
We are at Rehab today-Blake woke up in a great mood! He just went back to do PT-he also gets 30 min massages on Wed! Lucky kid! lol We found out yesterday that Blake gets to attend the Rehab Institute's Summer Camp!! He will stay at 3 days a week. They go on field trips on Wed's, and he will get to do fun crafts and activities. Im really excited for him to get to participate. It will be great for him socially too! I cant believe ita almost been a year since this whole thing started. He turns 3 in June-I cant believe it! He is gettin so big-time sure does fly! We are already planning his party! Im gonna do a circus theme-thanks to Union Hill letting me use the same decorations they used for their Ann. week! I have a feeling this is gonna be his best party yet! :)
I will talk to you all soon! Thanks for keeping us in your thoughts and prayers!
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