Thurs Aug 6, 2009

Hi everyone! We are all doing well. We found out on Wed. that there is a possibility that Blake will need Botox injections in his leg and arm. He is having difficulty when it comes to putting his foot flat on the ground, he looks like he is on his tiptoes but the tone in his leg is what’s causing it. He is also struggling with opening and closing his hand, they are trying to get him to pick up weightless objects and he is doing really well, except he has a hard time releasing things. Botox will help relax the muscles so the therapists can help Blake work on those areas. I hate the idea of injections-it sounds painful, but I can see him struggling and I know its all for the best. The therapists are also looking at extending his time at therapy an extra hour. In reality that means 9-12 therapy, 12-1 lunch, and depending on Blake’s moon 1-2 nap or therapy. If he naps from 1-2 then therapy would be 2-3. This makes a LONG day for both of us. I know we can do it, and I am very excited about getting more therapy in. However, I have to stay at the institute while he is getting therapy, and honestly it’s getting to be pretty boring for me. :) There is no wireless network-and I am having a hard time keeping busy while I’m there. I have read a book, started into another one, read countless magazines, and worked on my lesson plans. So what’s a girl to do? Lol. I know my creative little mind will come up with something. If anyone has any ideas-please let me know. I am definitely up for suggestions. Let’s see what else. Oh there is also a chance that we will have to get his leg brace (AFO) modified. Our PT Lynn said she is going to look at it on Friday and let us know. We are looking forward to the ‘Park Party’ on Friday. Blake really enjoys seeing all the kids. He is having a blast!! Please feel free to join us, even if it’s just for a short time. I love seeing all the kids too! I am really missing them! Right now the plan for Blake is that we will continue 3 days a week till November. There is no set in stone date, it all depends on Blake recovery. This means I could be back to work sooner, or later. This is hard for me because I miss work and my class and there is no set date to plan on. I do really well when there is a plan. I am trying to get used to all this ‘unknown’ information (i.e. brain tumor, therapy, everything we have to be patient with) . A new life lesson I guess. ;) I just keep praying that we will be back at school soon. Blake is amazing and I am going to do all that I can to help get him back to where he needs to be. I guess I will talk to you all later! I miss you all and am so grateful for everything you have done for us!!