Hi all my faithful readers! So we are 5 treatments away from being done with proton therapy. Blake is still doing really well. His head is red where they do the proton treatment. I went ahead and shaved his head with NO guard so that it wouldn't be so obvious where he is bald. I see a lot of Phil in him now that his head is shaved. lol. He looks pretty cute. This past weekend he ran a fever of 101.7 and 100. Im still not sure why, but his doctor didnt seem to be too concerned. He didnt have an appetite either, thank goodness for pediasure. He loves them, and if he wont drink them I can push them through his g-tube. Thank god we have that to use if he isnt eating and drinking. Everything else is going well. He has his audiology follow up tomorrow morning and and MRI next Tues. Then we are done with apts until we come back in a month. I am excited for his 'gradutation' from Proton therapy. Blake's friend Noah graduates the same day. Its going to be such a great day, and a sad day. The nurses and doctors make it a big deal-balloon bouquet and a present, he gets to keep his mask and one of the plates they use for the proton machine. Its really cool. Im super excited for him to graduate! Then we will have a few days to clean, pack, and get ready for our 12 hour drive home. I got a call today from a Christian organization I emailed last week, they might have a flight to get Phil down here. I am keeping my fingers crossed. It would be so great to have him ride home with me and Blake. I am really going to miss everyone here. I have made so many new friends and gotten to know a whole new side of family. I cant wait to come back and catch up with everyon. I am looking forward to going home, I cant wait to get back into our routine. I have a lot to do when I get home lol. Well, time for bed. See you all soon! Thanks for all the support-you guys rock!!
No comments:
Post a Comment