Hi everyone. We could really use your prayers and positive thinking:
I went and talked with our Neurologist, Dr Le Pichon yesterday to discuss the MRI results. He is really good at explaining things to us in terms we can understand. He showed me the scans, slide by slide, explaining his thoughts. He read Dr. Shores report to me and gave me a copy of the radiology report. Its all really scary, but nothing is definite yet. We are going to wait through the 2 full cycles of chemo (12 weeks) for his next MRI. Dr. Le Pichon said he agreed with Dr. Shore, that waiting would give us a clearer picture if his tumor is growing. I know I told you all that Dr. Shore said he "didnt have a plan" for us if Blakes tumor has in fact grown. Dr. Le Pichon explained what exactly Dr. Shore meant. He meant that this is the only known treatment for Blakes specific tumor. Dr. Shore is doing all that he can. He is contacting St. Judes again to touch base with them and figure out if there is any open protocols that Blake would qualify for now just in case his tumor is in fact growing. I also have sent an email to MD Anderson's Children's Cancer Hospital in Houston, TX. After my Aunt Jean told my dad about it, my dad told me, I asked our neurologist and he said we should definitly get their opinion. They are the #1 cancer center in America. Their website says that their oncologists treat more rare cancers in a single day than most physicians see in a lifetime. Sounds pretty good huh?! So im going after them for a 2nd opinion. Here are a few more facts about them: Leading-edge technologies and therapies not found at most hospitals, they have been eliminating pediatric cancer for more than 6 decades, pioneering therapies that are more effective and less invasice for their patients, and they have innovative therapies generally available several years before they become standards of care elsewhere. So pers olease pray that they will be able to have some new information for us reguarding Blake's tumor. I know we are still waiting to confirm whether or not his tumor is still growing but why not get as much info now?!
Here is what we need prayers for:
**Blakes tumor to shrink/stop growing/or to disappear all together
**For MD Anderson's Childrens Cancer Hospital to have more options for us if Blakes tumor is growing
**For Phil and I to have the strength to get through this hard time-we are doing as well as can be expected-we are trying to stay strong and positive with faith and hope that things will get better!
Thank you all for all your support and prayers-It means the world to us knowing you are all behind us!
I went and talked with our Neurologist, Dr Le Pichon yesterday to discuss the MRI results. He is really good at explaining things to us in terms we can understand. He showed me the scans, slide by slide, explaining his thoughts. He read Dr. Shores report to me and gave me a copy of the radiology report. Its all really scary, but nothing is definite yet. We are going to wait through the 2 full cycles of chemo (12 weeks) for his next MRI. Dr. Le Pichon said he agreed with Dr. Shore, that waiting would give us a clearer picture if his tumor is growing. I know I told you all that Dr. Shore said he "didnt have a plan" for us if Blakes tumor has in fact grown. Dr. Le Pichon explained what exactly Dr. Shore meant. He meant that this is the only known treatment for Blakes specific tumor. Dr. Shore is doing all that he can. He is contacting St. Judes again to touch base with them and figure out if there is any open protocols that Blake would qualify for now just in case his tumor is in fact growing. I also have sent an email to MD Anderson's Children's Cancer Hospital in Houston, TX. After my Aunt Jean told my dad about it, my dad told me, I asked our neurologist and he said we should definitly get their opinion. They are the #1 cancer center in America. Their website says that their oncologists treat more rare cancers in a single day than most physicians see in a lifetime. Sounds pretty good huh?! So im going after them for a 2nd opinion. Here are a few more facts about them: Leading-edge technologies and therapies not found at most hospitals, they have been eliminating pediatric cancer for more than 6 decades, pioneering therapies that are more effective and less invasice for their patients, and they have innovative therapies generally available several years before they become standards of care elsewhere. So pers olease pray that they will be able to have some new information for us reguarding Blake's tumor. I know we are still waiting to confirm whether or not his tumor is still growing but why not get as much info now?!
Here is what we need prayers for:
**Blakes tumor to shrink/stop growing/or to disappear all together
**For MD Anderson's Childrens Cancer Hospital to have more options for us if Blakes tumor is growing
**For Phil and I to have the strength to get through this hard time-we are doing as well as can be expected-we are trying to stay strong and positive with faith and hope that things will get better!
Thank you all for all your support and prayers-It means the world to us knowing you are all behind us!
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