Children's Halloween Costume Party

Christian has given me the info for the Party! Im so excited!! Here is all the info that is on the flyer:

All Hallow's Eve Children's Halloween COSTUME Party as a Benefit for Blake Danforth
sweet or scary,
ghost or fairy,
dead or alive,
don't be late to arrive...

Friday, October 30th, 2009
7:00-the witching hour

$8 per child

New Life Family Church
4835 Shawnee Drive
Kansas City, MO 66106

Please join us fro a fun-filled night and a chance to party with Frankenstein (Blake)!!
This is an open invitation, so invite your friends and family!
Children MUST BE accompanied by an adult.
Feel free to dress up with your child.
Bring trick-or-treat bags!
Games, crafts, a movie, and much more!! (We will be watching Hocus Pocus from 9-10:30pm)

PLEASE RSVP by October 15th
Catch Me Running: The Blake Danforth Foundation
blakedanforthfoundation@gmail.com
(417)684-5461

Wed Sept 23, 2009

Hi everyone! So we had our neurologist appt today at Childrens Mercy South with Dr. Lepichon. He was AMAZING!! We were able to look at ALL of Blakes MRI's and he explained them to us. From what I understood, Blake still has a lot of swelling left, at least that is what they hope it is. We also learned that Blake MIGHT be having seizures-which could be causing the falling down, waking up in the middle of the night, etc. He ordered a EEG, which we have scheduled for November. Until then he has given us a seizure medication to try. We started the seizure medication tonight. He told us if it is seizures that Blake is having we should see an improvement in 2 or so days. He gave me some books to read about seizures. He gave us so much information, it has really helped me feel more comfortable about our situation. He agreed with Dr. Hornig that the best thing to do now is wait and see what the next MRI tells us. He said that good news would be that the MRI looks the same or better. Obviously if its bigger thats bad news. So we are waiting with hope that the next MRI will bring good news.
Also, we are looking into starting Blake in a half day preschool program. We aren't sure where he will be going just yet, we are looking into a specialty school TLC, where he would recieve 1 on 1 care along with OT/PT/Speech. This is our next big decision. I would love for him to go back to Union Hill, but due to his physical limitations im not sure how that would work and if it would be the best place for him due to his limitations. So we are waiting for TLC's social worker to call us back and set up a time to go visit their school. I am so excited for Blake to be getting a little 'normality' back. Blake loved school before all of this happened so I know he will be excited to be back! We would still continue at Rehab Institute 3 days a week, but would be going only half days. I know Blake would love to be around kids his age, he is quite the social butterfly these days. :)
One more thing...My friend Christian wanted me to put a bug in your ears. She is planning a Halloween Benefit Party for kids on Fri. Oct 30. I will be getting more info soon. So mark your calendars!!
I want to thank you all again for all your prayers and thoughts! I cant tell you how blessed we feel to have all of you supporting us!!

Fri Sept 18, 2009

So our MRI was Tues. As far as news goes-they were able to get a good look at the tumor that is still in his brain, but were unable to tell us what is causing Blake to fall down and drool so much. This MRI is our base. It is our first MRI since the surgery, and our next one will be in December. Hopefully at our second MRI we will find out if the tumor is growing or not. Dr. Hornig(our neurosurgeon) is sending us to go see Dr. Lepichon-he is a neurologist, next Wed. I am hoping he will be able to explain more to us. Blake is doing well otherwise. I want to thank all of you for praying for us. We were nervous about the MRI and even though we dont know what's causing him to fall/drool, I was relieved that there was no bad news. So we wait now. Thanks again for all the prayers!!