Sun June 6, 2010

My little Rockstar!

Wow! What a great week and weekend! So Friday we met with Dr. Wolff for a routine weekly check up. Our apt was for 11 with him, but he was running 2 hours behind schedule. :( I cant complain though because he is such an amazing doctor-totally worth the wait! Plus while we were waiting Flashes of Hope was doing photoshoots-so of course we participated! They are a nonprofit organization that takes photos of children fighting cancer and other life-threatening illnesses. How cool is that?! In 5-6 weeks we get 2 8x10, 4x6 proofs and a cd of all the images!! FOR FREE!! I am so excited! Blake was a total ham during the whole shoot. The photographers and staff just loved him! It means a lot to me that we did the shoot on Friday because after Wed-NO MORE MOHAWK! The radiation is going to cause bald spots-and we cant use hairspray or any perfume type hair products. We have to wash his hair with gentle baby shampoo and wear a hat so he doesnt get exposed to sunlight. His little head is gonna be so sensitive! So having photos taken before all of that-it was a nice surprise! Dr. Wolff came in and picked Blake up-giving him kisses and hugs! You can totally tell he loves his job-and all the kids. We talked and he let me know he was going to set up PT/OT for while we are in Texas! Woo Hoo!! Get some use out of the botox! :) He also is sending us to see the Neurologist-Blake has been itching his nose a lot-and it almost seems like he has some type of sensation on the right side of his mouth. So we are looking into all of that. We go in on Wed for our 1st proton therapy session. I am eager to see how quickly the tumor will disappear. I pray that it all goes smoothly. Blake is such a fighter!

Love this picture!

Saturday we did a few errands-then Blake played in the baby pool we got to put in my aunts backyard. Blake actually got in a few times. He normally just stays on the outside. Then that night we went to Blakes favorite place-Wal-Mart. Lol got a few things we needed and then came home for bed!

Sunday-we attended church with my Aunt. Its a huge church-but very cool! Blake went to the 3 year old class-he did so good. I was so proud of him. He is just getting so big. After church we came home and had lunch. Now Blake is napping-thank goodness. He was up a lot last night. Poor kid got a mosquito bite on his arm that was itchy all last night. It kept him up. We might go for a drive later-maybe take Blake to one of those indoor playareas-like at McDonalds or something. The heat is horrible and wears him out so fast. Indoor with air-conditioning sounds good to me. :)

One of my favorites!

Ok-so those of you who havent already heard...the Art Auction was a huge huge HUGE success! They raised $4200 and still counting! I was so chocked up when I got the message. I cannot believe all the people who donated and got together to support Blake. He has to be one of the most loved little guys out there! He has so much love and support surrounding him-and us. I cannot tell you how greateful we are of everything everyone has done for us. Its SO much!! I feel so blessed to be surrounded by SO many people who love us and are willing to help us in anyway they can. Its truly a blessing! You have all made such an impact on our lives! I dont think I will ever be able to repay you all for everything you have done! I hope you all know just how much all of your support and love means to us. Thank you thank you thank you!!

Thur June 3, 2010

Hi everyone! Blake had his first Proton Therapy apt yesterday. It was just a trial run. I must say it went really well. Our apt was at 2 and we were done and out by 3. It went so smooth! Everyone we met at the Proton Center was SUPER nice. They are very kid friendly. Blake had fun playing with all the toys. When we went back to meet the anesthesiologist he told the nurse "be careful my port". I couldnt believe my ears. He is talking SO much now. She smiled and told him she would be very careful. So I picked him up and set him on my lap. We raised his shirt and after counting to 3 it was done. His port was accessed. She let him push the buttons on the machine to administer his medicine. Then in 2 minutes he was asleep. I helped position him on the bed and then went out to talk to the nurse. By the time she finished talking to me-Blake was already in recovery. Within 15 min later a nurse was carrying Blake out to me. So we headed home-eating snacks the whole way! Blake cant eat before his sedation so yesterday was quite the challenge since his apt was at 2. Our first actual proton therapy apt is June 9th at 630am. Tomorrow we meet with Dr. Wolff. I will keep you guys posted on how it all goes!
Tonight is the Art Show. I wish SO bad that we were in town for it. I know my family will be there in honor of us-but Ive heard there is gonna be a lot of amazing art! There are so many people who have contributed to the show. Im not sure how I am going to thank all of them. I am just so touched at all the support everyone is showing for us! I hope one day we can show people the same love and support you have shown us in this time of difficulty! Thank you all for everything!

Tue June 1, 2010

Hello! We made it to Houston in 12 hours on Sunday. Had a very relaxing Monday. Today has been a relaxing day as well. Tomorrow we go to the Proton Center for Blake's simulation. I am very anxious to see how this is all going to work. I want to say thank you for all your support. We are doing well, just a little homesick. My family in Houston is taking great care of us. We are VERY lucky to have them here while we are going through this treatment. Blake has a 'home' to come back to after treatments. So I feel very blessed. It still amazes me that through all of this-things just have a way of working out. We truly have AMAZING supporters helping us through each chapter of Blakes treatments. God is good!! Ok so I will be on soon-to update you on how day 1 goes. Love you all!!