Fri Jan 9, 2010

Well we have new info on Blake. We went to see the neurologist today. He let us see the MRI's and we had LOTS of questions since we have had time to process a lot of stuff. Blakes tumor is on his Brain Stem. Its on the middle-upper part. I cant remember the technical term. Sorry. We have talked about it and have decided if we are ever going to get a 2nd opinion-NOW would be the best time. So I am getting ahold of my St. Judes contact, I got the info back when we were getting his MRI's. Good thing I did huh?! So we will hopefully get everything lined up and will be heading to Tennessee soon. I cant thank you all enough for all the prayers and all your support. I find myself very touched when I log on and see that you have left me messages! They mean a lot to me. This is a scary situation and having your support makes a difference!! So thank you! I will keep you all posted on any new development!!

Thurs Jan 7, 2010

Ok so we had our big apt today. He is on a 42 day cycle. Blake will start 3 types of oral chemo, and one that they will insert into his port. He gets his central line(port) in his chest next Thursday. Then the following Monday we have another apt with Dr. Shore. I think its to get his prescriptions and all the rest of the info. They said Blake will loose his hair-im having a hard time with that. I know its silly. Im sure when the time comes I will be ready. We are all dealing as well as we can. Its scary. His treatment is scheduled to last 48 weeks-so almost a year. We will go in every week to get a blood count. His MRI's will be every 2 months rather than every 3 months. Im still a little emotional-so im sure when the shock wears off I will remember a lot more info. Thank you all for keeping us in your prayers! All the support means so much to us!! I will keep you posted!

Wed Jan 6, 2010

Well its 2010! We celebrated our New Years at home. Blake broke out in a full body rash new years eve, so we didnt make it over to Megan's for New Years. We were all in bed by 8:30pm lol. It was a quiet one this year. Phil also wasnt feeling well. We think it was a virus that he got-by Monday he was fine. He never had a fever or any symptoms. Weird huh?! So tomorrow is the day we have patiently been waiting for. We go talk to Dr. Shore at 1:45pm. Im sorta glad its not until the afternoon-with all this snow im hoping the roads will have been cleared off. Blake is really enjoying the snowfall. He keeps going over to the window and just staring as the snow falls. He also likes watching the squirels jump through the snow. It makes him laugh. He has had a nice winter break. TLC-his preschool has been closed since the Monday before Christmas-and this week due to the snow-they are still closed. This is his 3rd week off. Therapy is going well. He has been pushed back to the end of March now for an estimated discharge date. I am getting used to it getting pushed back now. lol. There is talk of dropping him down to 2 days a week rather than 3, everyone is waiting to see what Dr. Shore has to say. There is a lot pending on this apt. I am looking forward to having a 'plan'. I hope you all had a Happy New Year! I am sure I will give you guys an update tomorrow after our apt. Thanks for keeping up with us! It really makes a difference knowing so many people care, and are praying for us! You are all amazing!!