Fri Sept 18, 2009

So our MRI was Tues. As far as news goes-they were able to get a good look at the tumor that is still in his brain, but were unable to tell us what is causing Blake to fall down and drool so much. This MRI is our base. It is our first MRI since the surgery, and our next one will be in December. Hopefully at our second MRI we will find out if the tumor is growing or not. Dr. Hornig(our neurosurgeon) is sending us to go see Dr. Lepichon-he is a neurologist, next Wed. I am hoping he will be able to explain more to us. Blake is doing well otherwise. I want to thank all of you for praying for us. We were nervous about the MRI and even though we dont know what's causing him to fall/drool, I was relieved that there was no bad news. So we wait now. Thanks again for all the prayers!!

Tues Sept 15, 2009

I need everyone to pray for us! Blake's MRI got bumped up to tomorrow. He has been falling down more frequently and drooling more. In addition to not sleeping that great and his eyes being puffy, the therapists are concerned. So tomorrow we go in for his MRI. I am praying that everything is ok.

Thurs Sept 10, 2009

Happy to be on Grandpa's boat-his very
first boat ride!



Blake and his cousin Katie, she was diagnosed with lukemia
only 5 months before we learned of Blakes brain tumor.
 Talk about 2 tough kiddos!



Hello! So we had a great time at the lake. Blake took his first boat ride. He loved it! We had so much fun seeing all of Phil's family. It was really nice to get away and not have a schedule to keep. I took my watch off and turned off my cell phone(I had no signal) and lost track of time. It was SO nice. Phil really enjoyed fishing with his niece Lauren, and he got to water ski too! It was just so nice to get away. When we got home, Phil got Blake his first 'ice cream truck' ice cream...he chose Batman of course! :)

So, this week was supposed to be a big week for us. However, it actually ended up being some what relaxing. Tuesday Blake went in to get his AFO(leg brace) modified. They decided to go ahead and order a whole new one. So in two weeks we will have a new brace. His current brace was made when we were still in the hospital and he wasnt walking yet. The new one will be angled a little. Im not sure exactly what else they are going to do to it, but I am excited to see the improvements Blake will make with a new brace! We were supposed to be scheduled for Botox on Wed. However, it got cancelled because they are still waiting to hear back from our insurance. I was a little disappointed. Its going to be rescheduled as soon as our insurance gives the okay. So we instead had a fun day with Nana and Mason. We went to the book store and got some books to work on colors, counting, and shapes. Today we had First Steps. Blake really enjoys playing with the therapists. :) He is working hard and showing improvements. There are a couple of things we are keeping an eye on. He is falling down and his drooling is picking up again. The falling could be caused by the tone that has built up-and the drooling could be caused by how tired he is from working so hard. I think we are going to try and bump his MRI up, just to be on the safe side. Other than those two things he is doing really well. His talking is improving daily. He is slowly getting better control of his right arm. That is his biggest challenge right now. He still neglects things on his right, and we are working on it daily.

Tomorrow is not going to be a fun day for me, im getting my wisdom teeth pulled. :( Ive been putting it off for a while and decided that since I am off work right now I might as well get it over with. I am sorta scared. I know I will be ok. Megan is going to watch Blake for us all day tomorrow so I can come home and relax. I know Blake will have a lot of fun at Aunt Mimi's. Plus he gets to hang out with Kirsten.
Well, I think that is all for now. I will let you all know once our Botox appointment is rescheduled. Keep us in your prayers!! Talk to you soon!