May 16, 2013

We are back from Houston, and Blake's MRI came back with happy results! His tumor continues to be STABLE!! Words cannot express our joy! Blake has one more week left as a Kindergartner. Its bittersweet. I am so proud of how far he has come. He never ceases to amaze us! 
Blake will be going to summer school in June-his teachers and us agree this will help him stay prepared for first grade. I still cant believe he is going to be a first grader. lol Oh how fast time fly's. 
I have been crazy busy preparing for our June Art Show & Silent Auction for givingSOLO. This year is going to be so much fun! We have been working so hard on improving the show and I know that everyone will be impressed with all the changes we have made. Everyone should mark their calendars because you DO NOT want to miss this show! Here is the flier: 

We are still looking for donations and children's art! So let me know if you want to participate!!! 

I will post again soon! As always, thank you for your support & prayers!!

April 5, 2013

Wow...I am ashamed that I have let a year go by without a single post! I dont even know where to begin. Life has somehow found a normalcy, that we are SO thankful for! Blake is about to finish Kindergarten and will be going to first grade next year. He has really come so far this year. His tumor has remained stable-we count our blessings every day! He has had 3 rounds of Botox since I last posted, and in February he had surgery on his right leg (tendon release) that is going to help him walk better & be able to put his heel down all the way. We are already seeing great results! He is growing like a weed, and is obsessed with superheroes-Batman specifically. He has quite the sense of humor and will talk your ear off if given the chance. He is such an amazing kid and I am so grateful that I am his mom.

Life has been good this past year. I am working again-almost full time. I am the office manager at a graphics company-I absolutely love my job! The hours are perfect, I am able to get Blake on the bus in the morning and I am home to get him off the bus in the afternoon. I couldn't ask for more perfect hours...or coworkers! Phil is still working at Pepsi. He has been there 9 years now. Where has the time gone?

We are getting ready to pack up and head to Texas for Blake's annual follow up at MD Anderson. We are really looking forward to spending a week down there-visiting family, going to the beach, adventures are endless! Blake has been asking us for months if it was time to go to Texas yet, he is so excited! Its our built in family vacation...even though we have doctors appointments almost everyday-its still a vacation to us!

I will try my best to get on here and post updates, again I appologize for not getting on here sooner! Life has picked up speed, its amazing to me how far we have come in the past couple years. Ya just never know what life will throw at you. We are BLESSED!!

At the Dixie Stampede in Branson, MO

Batman Live

Batman waters our grass for us

First Day of Kindergarten

November MRI @ Childrens Mercy Hospital

Kindergarten School Photo