Mon Dec 28, 2009

At the Danforth side, Blake and Katie heading out

I hope everyone had a VERY Merry Christmas! Blake had a really nice Christmas. We left Christmas Eve to go down and see Phil's family. They live 2 hours south of us. It was really nice to see everyone. We came back on Saturday-and boy what a shock! There was A LOT of snow. lol. They only had like 1 or 2 inches where we were staying. I was so excited to have a 'white Christmas'. We had Christmas with my family on Sunday. I really missed spending Christmas day with them. This was the first year we were away for Christmas. Blake had so much fun opening gifts. I actually think he liked that more than actually getting gifts. lol. He got a lot of fun stuff this year! The Fisher Price Batman Cave-he loves Batman, a stuffed dog-Lola that he drags around by a leash lol, some books, a couple movies, some clothes, and of course Disney's Car 'cars'. I think its about time for a garage sale-lol. I never thought one kid could have so many toys. Once you have a kid-toys seem to come out of the woodwork. lol. So my job while we are on a little 'winter break' is to organize and go through the house and bag up what we dont use. Ugh! What happened to playing with new toys and just bein a kid. I am really an adult now. lol. Blake has 2 apts next week, and let me tell ya the week is going by really slow. I am really ready to hear what Dr. Shore is planning for Blake. We still need all the prayers we can get-I know everything has already been planned out-but miracles do happen! So pray for us please!! I am looking forward to the new year and I hope its a good one! Thank you all for keeping up with us! Your support means SO much to me. I will update you as soon as we find something out! Talk to you soon!





Always doing things to make us laugh!



Cousins on my side-Kirsten, Mason & Blake



Sat Dec 20, 2009

Hi everyone! So I wish I could say that everything is the same and that we are moving closer to Blake being discharged from Rehab. However we got some disheartening news last week. Blake's MRI showed that his tumor had slight growth. So at the beginning of the new year we will be going to talk to oncology/hematology. They are going to get Blake on some sort of treatment plan. We wont know what kind of treatment until we go talk to Dr. Shore. I also talked to Blake's neurologist about his seizures. I found out that he has epilepsy and most likely he will have to be on seizure medicine for the rest of his life. Dr. LePichon said a small amount of kids outgrow their seizures, but due to the scar on his brain he thinks this is unlikely for Blake. I know Blake has suprised us before, so I still have hope! Due to him not being discharged from therapy and us looking into treatment this means, unfortunately I wont be able to return to work in January like I hoped. I still hope that one day I will be able to return. I really loved my job-and my class!! I have such an amazing group of parents and children. I miss them A LOT! I also have such INCREDIBLE bosses-to whom I cant thank enough for all their support and understanding.
So other than our recent news, Blake is doing really well in therapy, and he is such a happy kid. We are going to continue to look at the positive. We still have a lot to be thankful for. Please keep us in your thoughts and prayers! I know you all are thinking of us! It really means a lot to us! Hope you all have a very Merry Christmas! I know I am looking forward to spending the holidays with our families!

Fri Dec 4, 2009

I cant believe its already December! This week has been so busy. Blake's cast has really helped his right arm become stronger. He is already showing improvement. I am so proud of him, he is being so patient with the cast. When he does get frustrated I just tell him to use his words and ask for help-and he does. I am trying to stay as patient as I can, its hard though because he isnt sleeping very much due to the cast. So being tired and having to be patient is quite a challenge. Im hanging in there though. Blake is doing really well in therapy at both Rehab and TLC. He has his MRI next Wed, im hoping we stay well until then, otherwise we will have to reschedule. He has been sick for the last 2 weeks. :( So I am keeping my fingers crossed. I am really anxious to see the results of the MRI. I am curious to see if things are the same/different/better. His speech therapist at TLC asked if we could get rid of the binky. Sooo after next Wed-we are doin it. Im not sure how Blake is going to do with it, Im just praying that its an easy transition. He really loves his binky. Lol. I know it has come in handy a lot. But its time. I guess thats all for this update! Talk to you all soon!!